Welcome to our May eNewsletter. We are publishing early this month as TSC Global Awareness Day is tomorrow. We hope you will all be able to get involved in helping to raise awareness of TSC this Friday 15 May. Thank you in advance.

Jackie, CEO, TSA 

Most people living with TSC experience epilepsy, and for many seizures can be difficult to control with medication alone. Understanding the range of treatment options, including when epilepsy surgery may be considered, is critical. Join Dr Emma MacDonald-Laurs (pictured) for this must-attend online education event. 

Our sincere thanks to Dr Fiona McKenzie, Clinical Geneticist with Genetic Health WA for her excellent Zoom education event on Genetic Testing. If you missed it, or want a recap, the video is now available on our website. 

Thank you to Clare Stuart, Sze-Ann Woon and Katrina Watt for all their work and to all the wonderful families who agreed we could share from their stories in TSA's submission to the Senate Inquiry on Epilepsy Care. We really hope the government will listen and take action on the recommendations we have made.