Have your say on epilepsy care

The government has launched a Senate Inquiry looking at epilepsy care in Australia. TSA will be making a submission. We urge you, as members of our Community who live with the impacts of epilepsy daily, to make individual submissions if you can. Help create change by having your say.

Find out more

2 new FREE Zoom events

Genetic testing and TSC

Genetic testing can help you find out if other family members have TSC and is also important when planning a family. In this online Zoom Information Event, Dr Fiona McKenzie, Clinical Geneticist will tell us more about when it is advisable to get genetic testing and what is involved.

Epilepsy and epilepsy surgery

Most people living with TSC experience epilepsy at some point in their lives, and for some people seizures can be difficult to control with medication alone. Understanding the range of treatment options, including when epilepsy surgery may be considered, is an important part of managing TSC. Dr Emma MacDonald-Laurs will tell us more.

Bella

Six years ago, we first spoke with Bella about her experience living with Tuberous Sclerosis Complex (TSC) and her journey with sirolimus treatment. Bella is now 36 years old and continues to be a participant in both bodybuilding and powerlifting. Hear more about this amazing young woman.

Read Bella's story

Light the Way on
TSC Global Awareness Day

Light the Way is back for 2026 - and our community is already coming together to make it shine. This year, we’re raising funds to strengthen the services that support people living with TSC and their families, every single day.
Will you join us? Register to fundraise and help light the way for others.

TSA is here for you

If you or a loved one need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service.

Call 1300 733 435 (Australia only)

Email [email protected]

You can also find the latest TSC information at tsa.org.au

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