It's been a very busy time here at TSA. Thank you to everyone who took part in the recent Well-Beans Caregiver Research Study and also in the pilot Sibling Support Program for Parents and Carers. The feedback from both was very positive. 

You can find out what else has been happening below...

Best wishes 

Jackie, CEO, TSA 

We are delighted to share our Impact Report for the 2024/2025 financial year. We hope you enjoy reading about everything we’ve accomplished together. Thank you to all our many supporters and partners for your compassion and generosity. 

Charlotte has turned love into action. She recently completed a 113km triathlon (a 1.9km swim, 90km cycle, and a half marathon run), raising almost $10,000 for TSA. Charlotte took on the challenge in honour of her brother Hamish, who lives with TSC.

Hamish was diagnosed with TSC when he was just 8  months old. Now 17, he’s doing the HSC with a traineeship in retail and warehousing.

Thank you Charlotte and Hamish. You are an amazing inspiration to us all! 

Thank you to everyone who attended TSA’s Annual General Meeting via Zoom on Saturday 15 November. Tom Keys (Treasurer) and Anna Beaton were formally appointed to the committee. 

TSA’s Medical Advisory Panel was also reappointed. After many years of incredible support, Dr David Mowat (pictured) has now stepped down from the Panel. We thank David most sincerely for his dedication, expertise, support and commitment to TSA and the TSC Community in Australia.

This study examined how Epidyolex, a purified pharmaceutical grade formulation of Cannabidiol (CBD), works over the long term for people with treatment-resistant focal epilepsy. It adds to the long-term evidence that CBD can be effective when other medicines have failed.