Dear ,

In our October issue we invite you to:

• send us your expression of interest for a new international study supporting caregivers of people living with TSC
• join us for TSA's AGM in November
• read Holly and Stella's story + more...

Best wishes

Jackie, CEO, TSA 

TSA has been selected to be one of just three sites worldwide participating in a new international study designed to support parents and family caregivers of people living with TSC. 

This 3-session program, based on a World Health Organisation (WHO) module, aims to strengthen caregiver capacity and resilience. Research shows this has a direct impact on the person living with TSC. 

If you are the parent/carer for a person living with TSC, we invite you to complete the Expression of Interest (EOI) form to be considered for this unique and ground-breaking opportunity.

Sincere thanks to Alison McIvor and David Matheson for sharing their personal stories with our TSC Community last week via Zoom. You can find out what living with TSC is like for them by viewing the video on our website.

This research seeks to understand the challenges and unmet needs of caregivers of people living with TSC. 

Holly and Stella are 11 year old twins who live in rural NSW. Holly was diagnosed with TSC before she was born. Stella shows no signs of the condition. Our thanks go out to their mum Rachel for sharing their family's story. 

If you are the dad of a child with complex medical needs, Macquarie University would like to hear about your experiences. They are studying how fathers are involved in their children’s care and health care services in order to understand how to improve support for fathers and families with children who have complex medical needs. 

All members of TSA are warmly welcomed to attend our Annual General Meeting (AGM) which will be held via Zoom on Saturday 15 November at 1.30pm AEDT. If you would like to join us please email [email protected] and we will send you a link to attend.