2 new Zoom events for our TSC Community!

On Tues 15 October, Jacqui Caudle will tell us about Carer Gateway, a free,national program which exists to help people in caring roles find and access free and essential supports such as counselling, peer support and respite.

Please join us for this free event during Carer's week.

Four in five people with TSC have skin issues, and they can be very challenging. In this online education event, expert dermatologist Associate Professor Deshan Sebaratnam will discuss TSC-related skin issues. Join us on Tues 19 November to find out more about the symptoms, diagnosis, treatment and management of skin issues in TSC.

New research study

As many of you will know, TSC is often associated with epilepsy and a variety of neuropsychiatric conditions collectively referred to as TAND (TSC-associated neuropsychiatric disorders). These can include autism spectrum disorder (ASD), intellectual disabilities, and behavioural problems, significantly affecting the quality of life for people living with TSC. This new research study investigated the long-term impact of epilepsy surgery on TAND outcomes in children with TSC.

Read Now

Video on TSC-related lung issues including LAM

We thank Associate Professor Deborah Yates, respiratory physician, for making available the video of her presentation on lung issues in TSC which was filmed for the TSA Community Connect event in Sydney earlier this year. You can view it on our website now.

View Now

Alana's story

Debbie Crosby, former President of TSA is well known to many of you in the TSC Community. Her daughter Alana was diagnosed with TSC as a baby. Alana is now 20 years old and Debbie and her family have kindly shared an update of their story to help other families who are also with living with the uncertainty of TSC.

Read Alana's Story

Please share your good times

Is your loved one living with TSC about to celebrate a birthday, did they pass their driving test, have a year without seizures, recover from surgery (like Katalina who is pictured) or achieve another milestone?

If you are happy to share your good times with the TSC Community on our Facebook page, please email photos and a couple of lines explaining your good news to [email protected]

For more...

To find out more about what we're currently working on, please click here.

To catch up on other recent news including research and events, please click here.

TSA is here for you

If you or a loved one need information or support about any aspect of living with TSC please connect with Katrina, the TSA Nurse. This is a free and confidential service.

Call 1300 733 435 (Australia only)

Email [email protected]

You can also find the latest TSC information at tsa.org.au

You can unsubscribe to our eNews at any time by clicking the unsubscribe option at the top of this email or to opt out of all TSA mailings click here.

All information collected by TSA and provided by you is in accordance with our Privacy Policy, to learn more click here.