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Seeking volunteers for our family information review group

Category: Uncategorized | 8

Are you affected by TSC or caring for someone with TSC? Are you passionate about making sure families like yours have access to accurate information about TSC that is also easy to understand?

What will the volunteer role involve?

All of the information pages on our website are reviewed by medical professionals to ensure their accuracy. The family information review group will ensure they are easy to understand.

We’ll email you drafts of our information pages. They might be new pages or updated versions of existing pages. You’ll reply within 2 weeks with any feedback you have. You can do this by making comments on the document itself, by typing your feedback in an email or even calling us. Whatever is easiest for you.

If life is too busy you can always opt out and review the next one.

What skills do I need to have?

Basic computer skills and email access are required. Other than that, we’re looking for as much diversity in this group as possible. If you are interested, simply email [email protected]

8 Responses

  1. Tony Chigioni


    Feel free to contact me.

    My daughter was diagnosed with tsc about one year ago. I would be happy to help.



    • Clare Stuart

      Thanks Tony, I’ll send you an email now. Hope your daughter is doing well.

  2. Linda Cameron

    Hi Clare
    Happy to help with this.

    • Clare Stuart

      Great! I have just sent you an email.

  3. Sally Dewhurst

    Hi Clare, I’d love to help with this. Regards, Sally

    • Clare Stuart

      Hi Sally,
      Great, I will send you an email soon.
      Thank you,

  4. Fiona

    Hi Clare,

    My son is newly diagnosed with TS (last week). I am happy to help but my knowledge of TS is limited to mostly what I’ve read on your website at this stage.


  5. Rosemary Dow

    Hi Clare, I would like to help out with reviewing articles. It is something that I can do from Melbourne. Regards, Rosemary

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