Clare’s Story I am really proud to present this series of sibling stories for this issue of Reach Out. It has been an honour to interview each sibling and listen to their stories, their strength and their kindness. Each day … Read More
Oscar’s Story As told by his mum Kate in conversation with TSA volunteer Todor Arsov “Oscar was diagnosed with a metastatic renal cell carcinoma and the alarm bells went on! We were quite shocked … It sounded like there wasn’t … Read More
Not everyone with TSC will have a disability. But for many that do their needs are complex and the NDIS brings major change to the way that disability services are funded and provided in most parts of Australia. At the … Read More
Read our information page on mTOR inhibitor medicines used in TSC Ava’s experience with mTOR inhibitors Joelle, Ava’s Mum, Western Australia Ava is ten and has tuberous sclerosis complex (TSC). She loves gymnastics, drama and horse riding and is generally … Read More
Read about the financial assistance available to help people with TSC For us not much is available. We only have access to the carers allowance and it doesn’t cover a lot. Our daughter isn’t “bad enough” to get the carers … Read More
In each edition of Reach Out, we publish the collective wisdom of TSC families from around Australia and New Zealand on a particular topic in a section called ‘Just between us’. This article on Genetic Testing was published in the … Read More
In each edition of Reach Out, we publish the collective wisdom of TSC families from around Australia on a particular topic in a section called ‘Just between us’. This article on Autism was published in the November 2013 edition of … Read More
In each edition of Reach Out, we publish the collective wisdom of TSC families from around Australia and New Zealand on a particular topic in a section called ‘Just between us’. This article on sleep was published in the May … Read More