You are invited to our next TSC Community Conference.  This two-day meeting is for everyone affected by TSC, including adults, families and carers.

This conference provides a unique opportunity for TSC-affected families and adults to hear from and ask questions of expert TSC health professionals, including Dr Darcy Krueger (pictured), Paediatric Neurologist and Director TSC, Cincinnati Children’s Hospital who is a leader in the identification and treatment of this disease. This is a unique opportunity for our TSC community to connect not only with expert TSC health professionals, but also with each other.

When:  Saturday 2 and Sunday 3 May, 2020.  

Where:  Colombo Conference Rooms, Gate 4, UNSW, High Street, Randwick, Sydney, NSW 2031.

Early Bird Registration is now open.  Registration is just $80 until 29 February 2020.

Register now

Some funding is available for attendees who require financial assistance to attend this event. Please see below for more information. Please contact us if costs are a barrier to your attendance. 

What will be discussed at the event?

The 2020 conference will provide updates on:

  • important new research and developments in the clinical use of mTOR inhibitors
  • updates on other new TSC research and treatments
  • discussion on ways of improving the management of TSC in Australia.

Further details about the program will be released very soon.

I get all my information about TSC from my doctors and from the internet. Why should I attend?

The event is a chance to meet and connect with TSC expert health professionals and other people who are living with TSC. These connections can be useful when you face future challenges of TSC. 

We’re yet to hear from an attendee at one of our educational events that regrets coming along. If you’ve never been to a TSA event before, we encourage you to try this year.  

The event will also provide opportunities to hear from TSC specialists and obtain a lot of up to date information all in one place. 

How long does the event go for?

The event will start at 9.30am on Saturday and finishes at 1pm on Sunday.  Morning tea, lunch and afternoon tea is included on Saturday and morning tea and lunch on Sunday. 

There will be a ‘meet and greet’ social event on the Saturday evening which will be held in a venue close to UNSW.  This is included in the conference registration fee.   

Can I get financial assistance to attend the event?

TSA is a recipient of some funding from the Australian Government to assist individuals in Australia with tuberous sclerosis complex and one support person travelling with them to attend this meeting 

The grant can be used to fund: 

  • Travel such as flights, ground transport to and from an airport, coach travel and fuel expenses for private car journeys 
  • Accommodation for up to two nightswith members of the same family sharing 

Please work with us to minimise costs by choosing the lowest cost options and staying with family and friends if possible.  

If your funding needs fall outside the above, please contact us to confirm if financial support can be provided. 

We have set the following limits per person to help maximise the number of people who can benefit from a travel grant:

Where you live                                                      Maximum claim amount
Sydney Metro Area > 25km from Randwick           Up to $70 per person
ACT and Regional NSW                                         Up to $150 per person
VIC and QLD                                                          Up to $400 per person
TAS and SA                                                            Up to $500 per person
NT and WA                                                             Up to $700 per person

We encourage you to apply for travel funding if you require this to attend the conference.

To apply for funding in Australia, please email [email protected] and include an estimate of your costs.  We will confirm the amount and success of your application. Funding will be awarded on a first come, first served basis until the grant has been fully allocated.  Reimbursements will be made by bank transfer no later than two weeks after the conference provided your receipts have been submitted at the conference. 

TSCNZ also has a small amount of funding available to assist those in New Zealand who require financial assistance to attend.  To apply for funding in New Zealand please email [email protected]

I am not from Sydney, where should I stay?

If you want to stay close to the conference venue, you should consider staying in Randwick or Coogee.  Options you might want to consider include:

Type Name Location Website
Hotel The Blenheim Randwick 26 Blenheim Street, RANDWICK https://theblenheimrandwick.com/
Hotel Veriu 65-71 Belmore Rd, Randwick https://www.veriu.com.au/randwick/en/?utm_source=Google%20My%20Business&utm_medium=organic&utm_campaign=Randwick_GMB
Lodge High Cross Park Lodge 7-9 Cuthill Street, Randwick https://www.sydneylodges.com/accommodation/randwick/lodge/11/high-cross-park-lodge.html
Lodge The Lurline 211 Avoca Street, Randwick https://thelurline.com/
Hotel The Crowne Plaza 242 Arden Street, Coogee https://www.ihg.com/crowneplaza/hotels/us/en/sydney/sydcb/hoteldetail?cm_mmc=GoogleMaps-_-CP-_-AU-_-SYDCB
Hotel Dive Hotel 243 Arden Street, Coogee https://www.divehotel.com.au/
Hotel Coogee Sands Hotel & Apartments 161 Dolphin Street, Coogee https://www.coogeesands.com.au/
Uni University of NSW Residential Wing Gate 11, AGSM Building, Kensington https://hospitality.unsw.edu.au/venues/accommodation

 

Can children attend?

Unfortunately this event is not really suitable for children and childcare cannot be provided at the venue.  If this is a barrier to you attending the event, please contact us to discuss options.

Can I bring my family members or other interested people?

Absolutely. We know that many people are involved in supporting a person with TSC and we welcome anyone who would like to participate in the event.

I am new to TSC. I am not sure if I want to meet others face to face

This is a common feeling. Coming to an event can be daunting. We’d love a chance to talk to you about this to see if we can help with your fears.

The people who attend our TSC education events are overwhelmingly welcoming and friendly. TSC affects everyone in different ways and people have different levels of knowledge about TSC; we remind each speaker of this to ensure there is something useful for everyone in each session.  If the meeting is emotionally overwhelming, we encourage you to take time out of the sessions and to talk to one of the TSA staff if you need to.