Just between us: kidneys

Oscar’s Story As told by his mum Kate in conversation with TSA volunteer Todor Arsov “Oscar was diagnosed with a metastatic renal cell carcinoma and the alarm bells went on! We were quite shocked … It sounded like there wasn’t … Read More

Just between us: Using mTOR inhibitor medicines

Read our information page on mTOR inhibitor medicines used in TSC Ava’s experience with mTOR inhibitors Joelle, Ava’s Mum, Western Australia Ava is ten and has tuberous sclerosis complex (TSC). She loves gymnastics, drama and horse riding and is generally … Read More

Tuberous Sclerosis Complex and the Kidneys (video)

Dr Tonya Kara, paediatric nephrologist from Starship Children’s Hospital and Dr Murray Leikis, Nephrologist from Wellington Hospital speak at the 2014 TSC Family Conference hosted by Tuberous Sclerosis Australia and Tuberous Sclerosis Complex New Zealand in Auckland in November 2014. … Read More

Kidney Health Australia

Kidney Health Australia, formerly known as the Australian Kidney Foundation, is a not for profit organization whose focus is to improve kidney health outcomes which lead to substantial improvements to the quality of life for people with kidney and urinary … Read More

Renal Resource Centre

The Centre provides renal patients with information and educational material to assist them in managing the effects of renal disease on their lifestyle. The Renal Resource Centre is a community health service of Northern Sydney Central Coast Health, but its … Read More