Dr Melinda Nolan and Dr Claire Spooner explain how TSC affects the brain and the available management and treatment options. Includes questions from the audience, which was made up of individuals with TSC and their families. Watch this video directly … Read More
Watch this video directly on YouTube This resource is a recording from the 2014 World TSC Conference held by the Tuberous Sclerosis Alliance in the USA. What is covered in this session Gary Mathern, MD, talks about epilepsy surgery in … Read More
A recording of the TS Alliance’s January 27, 2014 Research Webinar, “Vigabatrin Associated Visual Field Loss (VAVFL): What You Need to Know” presented by Dr. Darcy Krueger, MD, PhD, Cincinnati Children’s Hospital Medical Center.
Synapse is an organisation supporting people with brain injuries. Their collection of fact sheets provides easy to read information about many of the challenges facing families living with Tuberous Sclerosis: mental illness, positive behaviour support, mood disorders, legal issues and … Read More
Filmed during the 2013 TSA Conference in Perth. You can read a basic overview of this topic at: The Behavioural, Intellectual, Learning and Psychiatric challenges of TSC
The NCWA provides counselling, information and advocacy for Western Australians living with a neurological condition, including those with Tuberous Sclerosis. Their services also include respite and personal care, social support and community nurses who may offer you or your family … Read More
Brainwave Australia supports children in NSW and VIC by helping improve their quality of life. Brainwave supports a range of neurological conditions including but not limited to tuberous sclerosis, brain cancer, autism, muscular dystrophy, strokes, childhood MS and acquired brain … Read More