You are invited to TSA’s TAND+ Conference on Saturday 20 November 2021
This in person, full day event in Perth will be held at the Four Points by Sheraton Hotel, 707 Wellington Street. It includes participation in a virtual event on TAND as well as a number of WA-based in person presentations and discussions.
The event will run from 9.00am – 5.30pm WA time and the event fee is just AU$50 per person (refreshments, lunch and end of day drinks are included). Click here to see the full program.
TAND stands for TSC-Associated Neuropsychiatric Disorders. It includes behaviour, intellectual disability, autism, learning difficulties and mental ill health. TAND impacts a significant proportion of people living with TSC and we know that these impacts on behavior, learning and mental health are often the most difficult symptoms of TSC to cope with. It is important that families, carers and health professionals are aware of these challenges and implement appropriate strategies to deal with them.
The virtual event will provide an opportunity to find out more about TAND and hear from and ask questions of international expert TSC health professionals:
Professor Petrus de Vries, Sue Struengmann Professor of Child & Adolescent Psychology, University of Cape Town
Professor Anna Jansen, Head of Paediatric Neurology, University Hospital Antwerp, Belgium
Register for the Perth event now
Additionally you will learn about the updated TSC Management and Surveillance Guidelines which have just been published. Dr Darcy Krueger, Director of the Tuberous Sclerosis Clinic at Cincinnati Children’s Hospital Medical Center, one of the lead authors will tell us what has changed and why. Click here to see the full program.
The Perth Conference will also include in person expert presentations and discussions on:
- Genetics and TSC – Dr Fiona Mc Kenzie, Geneticist, King Edward Memorial Hospital for Women, Subiaco
- Epilepsy and TSC – Professor Lakshmi Nagarajan, Neurologist/Epileptologist, Perth Children’s Hospital
- Services available to the TSC Community in WA
This is a great opportunity to learn more about TSC and TAND and also meet other people facing the challenges of living with TSC as well as connect with health professionals working in WA.
Some funding is available to provide financial assistance to participants. See below for details of eligibility.
Perth in person full day event – Subiaco Room, Four Points by Sheraton Hotel, 707 Wellington Street, Perth, WA
9.00am – 5.30pm – includes refreshments, lunch from 1.00 – 2.00pm and social drinks from 4.30pm
There will be time for questions and plenty of refreshment breaks.
The morning will largely focus on the updated TSC Management and Surveillance Guidelines which have recently been published. Significantly, this is the first update since 2013 and Dr Darcy Krueger will be telling us what has changed and why.
Many of the updates are in the area of TAND – TSC Associated Neuropsychiatric Disorders. We know this can be one of the most challenging aspects of TSC for many families and adults living with the disease. You will have a unique opportunity to hear from two international experts in this field – Psychiatrist Professor Petrus de Vries and Paediatric Neurologist Professor Anna Jansen. They will discuss and answer your questions on:
- What is TAND?
- How does it present?
- Managing TAND – the latest research and the new clinical guidelines for identifying and treating TAND
The Perth Conference will also include in person expert presentations and discussions on:
- Genetics and TSC – Dr Fiona Mc Kenzie, Geneticist, King Edward Memorial Hospital for Women,
- Epilepsy and TSC – Professor Lakshmi Nagarajan, Neurologist/Epileptologist, Perth Children’s Hospital
- Services available to the TSC Community in WA
Click here to see the full program.
This conference provides a unique opportunity for TSC-affected families and adults to hear from and ask questions of expert TSC health professionals and to connect with and learn from each other.
The event fee is just AU$50 per person (inclusive of refreshments, lunch and end of day drinks).
TSA is a recipient of funding from the Commonwealth Department of Social Services to assist individuals in Australia to participate in this conference. This grant funding will cover the event fee for eligible attendees. It may also cover some travel and accommodation costs for those needing to travel to attend the Perth event.
You are eligible for this funding if:
- you have TSC or LAM yourself or
- someone in your household who has TSC will be attending the conference with you
To take advantage of this funding and register for free simply tick the relevant box on the registration form. For information on support with travel and accommodation costs or for other requests for financial support to attend the event in Perth, please email [email protected]
Absolutely. We know that many people are involved in supporting a person with TSC and we welcome anyone who would like to participate in the event. If anyone who will be attending has TSC or LAM, the event fee can be covered by a government grant. Simply tick the relevant box on the registration form.
The conference is hosted by TSA and supported by an amazing community of expert TSC health professionals.
TSA’s TAND+ Conference 2021 has been made possible thanks to the generosity of the following sponsors:
