|You are invited to join Genetic Alliance, Sanofi Genzyme and Syndromes without a name for an evening of discussion and interaction with the rare disease community.
Those impacted by rare diseases often experience significant health, psychosocial, economic burdens and diagnostic delays. While conditions may be diverse, personal experiences show universal themes of successes and challenges.
The objective of this event is to highlight gaps, and what we can do collectively and individually, to move forward. We welcome members of the Rare Disease community to this event and we invite families to bring along children.
Refreshments will be served and we invite our guests to participate in a variety of activities and interactions to support the theme of the 2020 International Rare Disease Day campaign: Reframe Rare – Rare is many; Rare is strong; Rare is proud. The event will also include an opportunity to view “The SWAN Portraits”, a project initiated and curated by members of the SWAN Australian Community.
Click here to RSVP