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Our advocacy work continues with a submission on PGD

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PGD stands for pre-implantation genetic diagnosis. It is a technology that can be used by people with Tuberous Sclerosis (TSC) who wish to have a child free of TSC. It is used in combination with IVF.

Genea (previously Sydney IVF) have made a submission to have PGD listed on the medicare benefits schedule.

Read more about the submission here:

https://www.msac.gov.au/internet/msac/publishing.nsf/Content/1165 (page now removed)


In March, Clare Stuart prepared a submission to the Medicare Services Advisory Committee (MSAC). There is no outcome yet.

You can read our submission here:

1165 – PASC Feedback Survey questionnaire- Accessible ATSS

If you would like to be involved in any future submissions on this topic, please contact us.


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