Help Us Understand TSC Surveillance
Are you 18 or older and diagnosed with TSC? Or are you a caregiver aged 18+ for someone living with TSC?
This study, conducted by a student from the University of South Carolina’s Genetic Counselling Graduate Program as part of a thesis project, aims to improve health care for the TSC Community by identifying factors that influence adherence to surveillance guidelines.
What’s Involved:
The survey includes questions about:
- Basic demographics
- Symptoms experienced by you or your child
- Understanding of surveillance guidelines
- Attitudes towards TSC surveillance
- Health care experiences with TSC surveillance
The insights gathered will help identify factors influencing adherence to the guidelines and explore ways health care professionals can better support the TSC Community.
Quick Details:
- Time Commitment: 10-15 minutes
- Incentives: Enter a draw for a $39 AUD Visa gift card after completing the survey and/or a $78 AUD Visa gift card for participating in a brief follow-up interview.
Participation is completely voluntary. This is a great way to be involved in meaningful research for the TSC Community.
How to Participate:
- Take the Survey Here
- Or scan the QR code in the flyer below with your smartphone
For questions, please contact Kashish Khanna at [email protected].
Thank you for helping improve TSC care and outcomes!
