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New information on mTOR inhibitor medicines for TSC

Tuberous Sclerosis Australia has published two new resources to help individuals with TSC and their families understand new medicines for TSC. Names of mTOR inhibitor medicines include Afinitor, Everolimus, Sirolimus, Rapamune, and Rapamycin.

Read our updated information page on mTOR inhibitor medicines used in TSC

Thank you to the health professionals for reviewing this information: Dr John Lawson, Paediatric Neurologist, Sydney Children’s Hospital, Dr Sean Kennedy, Paediatric Nephrologist, Sydney Children’s Hospital, Dr Orli Wargon, Dermatologist, Sydney Children’s Hospital.

Read stories from people with TSC using mTOR inhibitor medicines

Thank you to the Neville, Cope, Williamson and Willacy families who shared their experiences.

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