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Melbourne TSC Information Day

You are invited to join TSA at our 2017 information day in Melbourne for people with TSC and their families. The event will include TSC expert speakers, a chance to meet others living with TSC and the presentation of the 2016 and 2017 Elizabeth Pinkerton Memorial Awards.

Sunday 8 October. Registration from 8:30am for 9am start. The day will conclude at 3:30pm.

Royal Children’s Hospital, 50 Flemington Rd Parkville

An informal dinner will be held on Saturday 7 October from 6:30pm.

The Albion Hotel, 171 Curzon St, North Melbourne.

Limited travel funding is available for people with TSC to attend the meeting along with a carer or family member. Please see below for more information. Registration is $25 until September 23 and $30 after that date and cover the cost of catering for the day. Please contact us if costs are a barrier to your attendance.

Registration has now closed.

We have closed registration on Thursday 5 October as we had to provide final catering numbers. If you have missed out and would still like to join us, please call Clare on 0410 685 181.

Download the program

What will be discussed at the conference?

The conference is a chance to learn about the latest research in TSC and how it is changing how TSC is managed and treated. In addition, there will be time to share stories, resources and contribute ideas to the future work of TSA.

Download the program

Confirmed topics include:

I get all my information about TSC from my doctors and from the internet. Why should I attend?

TSC research is making amazing discoveries that are changing the way TSC is managed and treated. The day will provide opportunities to hear from TSC specialist doctors and obtain a lot of up to date information all in one place.

The conference is also a chance to meet others with TSC. These connections can be useful when you face future challenges of TSC.

We’re yet to hear from an attendee at one of our educational events that regrets coming along. If you’ve never been to a tuberous sclerosis event before, we encourage you to try this year.

How long does the day go for?

On Saturday evening there will be an informal dinner venue chosen to allow people who want to meet others to do so in a relaxed setting before the meeting. On Sunday, we expect the day to commence at 9am and conclude by 4pm. The draft program will be published soon.

Can I get financial assistance to travel to the conference?

TSA is a recipient of funding from the Australian Government to assist adults with tuberous sclerosis to attend this meeting along with a carer. This funding, unfortunately, is not available for family members to attend without the person with TSC.

The grant can be used to fund:

  • Travel such as flights, ground transport to and from an airport, coach travel and fuel expenses for private car journeys
  • Accommodation can be up to two nights at Mercure North Melbourne, with members of the same family sharing.

If your travel needs fall outside the above, please contact us to confirm if these can be covered. Please work with us to minimise costs by choosing the lowest cost options and staying with family and friends if possible.  Recipients of a travel grant will need to cover their own conference registration fees.

The grants will be paid by bank transfer on Monday 9 October. Receipts for travel, fuel or accommodation expenses must be presented at the conference.

To apply for a travel grant, please email clare@tsa.org.au and include an estimate of your travel costs. We will reply within a few days to confirm your grant. The grants will be awarded on a first come, first served basis until funding has been fully allocated.

I am not from Melbourne, where should I stay?

We have secured a group discount at Mercure North Melbourne, a short walk from the venue.

If you are receiving a travel grant, we can book your accommodation for you. If you are not receiving a travel grant, you can secure the group discount by calling (03) 9329 1788 and quoting the reference ‘tsa’.

You can also look at:

Air BnB

More options on Booking.com 

Can children attend?

The conference is not suitable for children and no childcare will be provided. Of course, infants with their carers are welcome. We have provided childcare at past events and it has not been used; families tell us they would prefer to arrange care closer to their homes.

Please contact us if a lack of childcare is a barrier to you attending the conference, we’re happy to help you if we can.

Can I bring my family members, teachers or other interested people?

Absolutely. We know that many people are involved in supporting a person with TSC and we have had  grandparents, friends, disability carers, nurses, genetic counsellors and GPs attend previous events.

I am new to TSC. I am not sure if I want to meet others face to face

This is a common feeling. Coming to an event can be daunting. We’d love a chance to talk to you about this to see if we can help with your fears.

The people who attend our TSC education events are overwhelmingly welcoming and friendly. TSC affects everyone in different ways and people have different levels of knowledge about TSC; we remind each speaker of this to ensure there is something useful for everyone in each session.  If the meeting is emotionally overwhelming, we encourage you to take time out of the sessions and to talk to one of the TSA staff or volunteers if you need to.

2 Responses

  1. Lisa trimboli
    | Reply

    I’m interested my daughter has had ts surgery in Melbourne this year .We live in Adelaide Is Simon Harvey a guest speaker he is our daughters Dr in Melbourne thankyou Lisa Trimboli

    • Clare Stuart
      | Reply

      Hi Lisa,
      Yes he is. We’ve got Dr Simon Harvey, Dr Rebecca Mitchell and Dr David Orchard from RCH on the program. I have just uploaded a draft of the program (times may change).
      Looking forward to meeting you at the event.
      Clare

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