Join the TSA team to help families living with tuberous sclerosis

• Assist this growing health not-for-profit
• Quarterly full day meetings plus additional time at events, teleconferences and emails between meetings
• We especially need your human resources, fundraising, marketing, finance, and risk management experience

Our management committee is the backbone of our small and growing organisation. Traditionally our committee has had a personal connection to tuberous sclerosis complex (TSC) and includes parents, grandparents and individuals with TSC. As we grow our services, income and staff we are seeking skilled committee members to join our team.

You will bring your passion for contributing to the not-for-profit sector and especially skills in human resources, fundraising, marketing, finance, or risk management.

The main areas of responsibility for the management committee are:

• Setting strategic vision and objectives
• Collaborating with the general manager to plan, deliver and evaluate TSA activities
• Ensuring TSA meets its legal obligations
• Managing TSAs finances, including investment strategy, budgeting and financial controls
• Contributing to policy development
• Managing risk
• Contributing to fundraising

Annual Budget: $100,000
Number of Paid Staff: 1
Number of Volunteers: 1-5
Community Segment: Health & Wellbeing
Current Board Size: 4-7
Board Meetings (frequency): Quarterly
Board Meetings Held: On Weekends
State where Board Meetings Held: New South Wales

About Tuberous Sclerosis Australia (TSA)

Tuberous sclerosis complex (TSC) affects more than 2000 individuals in Australia and thousands more carers, families and friends who live with the impact of the disease.  TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. There is no known cure for TSC, but with appropriate support most people with TSC can live fulfilling lives.

Tuberous Sclerosis Australia empowers people affected by TSC through access to the best treatment options, up to date information and support.  Our activities include:

• Information and support provided by phone, email and facebook
• Published information through our magazine, website, information pages, resource directory and email newsletters
• Educational events for individuals with TSC, their families and health professionals
• Advocacy on policy issues affecting people with TSC such as improving medical care
• Funding of Australian research into TSC

Currently we employ one general manager (0.5 FTE) and are planning for growth.

Contact

For more information, contact Debbie Crosby (TSA President) on 0400 495 034 or by email [email protected]

• Assist this small not-for-profit
• Gain experience in WordPress, Mailchimp, Facebook and Twitter
• Regular commitment of one shift (3 hours or more) per fortnight on a Monday or Tuesday.
• Potential to work from home after initial training period

The online content management is responsible for posting articles to the TSA website, sending email newsletters, posting on the TSA facebook page and TSA twitter account. In addition, other administrative duties would be included in the role such as managing contact details or putting together materials for events.

General computer skills are required including confidence in using web based applications and email. Training in content management in WordPress, managing social media accounts (facebook and twitter) and using mailchimp for email newsletters will be provided.

This volunteer role can be modified to suit your skills and interests. For example it could include more technical work on the website and CRM platform or being more involved in writing content and maintaining our digital marketing strategy and content calendar. Get in touch to discuss.

About Tuberous Sclerosis Australia (TSA)

Tuberous Sclerosis Australia is a national organisation and most of our work is done remotely from a home office in Orange.

Tuberous sclerosis complex (TSC) affects more than 2000 individuals in Australia and thousands more carers, families and friends who live with the impact of the disease.  TSC tumours can grow in any organ of the body, commonly affecting the brain, skin, heart, lungs and kidneys. TSC can cause epilepsy, developmental delay and autism. There is no known cure for TSC, but with appropriate support most people with TSC can live fulfilling lives.

Tuberous Sclerosis Australia empowers people affected by TSC through access to the best treatment options, up to date information and support.

You can read more about us at www.tsa.org.au

Contact

For more information, contact Clare Stuart (TSA General Manager) on 0410 685 181 or by email [email protected]