You may already know a little of the challenges our family has faced because of Tuberous Sclerosis Complex (TSC).
We are running in the virtual City2Surf this year because we know first hand what it has meant for our family to have access to specific support and tailored information regarding TSC and all that it entails. When we are educated, we are empowered to advocate for those we love and get them the right kind of help and support.
We are full of thanks for the amazing support from our medical teams, family, friends and the team at Tuberous Sclerosis Australia.
Join our team of heroes fighting to improve the diagnosis and treatments for families like ours by making a gift in our honour to support all Australian families living with TSC.
We believe so much in the work of TSA who help and support families like ours affected by this complex disease. Your contribution will help children with TSC in Australia now and in the future.
It would mean so much to us if you would please donate now.
Thank you so much,
Clements Family xx
p.s.Tuberous Sclerosis Australia receives no ongoing government funding and relies solely on your generosity to provide vital information, support and advocacy services plus champion research so one day we may find a cure for this devastating disease.
$50 allows us to answer a single support or information request
Families contact us by phone, email and social media. We provide accurate and up to date information about various aspects of TSC. We can also refer them to resources that can help them such as a medical professional with TSC knowledge in their area
$125 allows an individual with TSC or their carer to attend an information event
Our face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet others living with TSC. These can be life changing experiences for many.
$450 allows us to update one of our medical information pages
Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research means that these information pages require regular revision.
Your donation will also help us to provide these services to families living with TSC:
- Maintain this website, the only online source of TSC information for families living in Australia
- Publishing and printing our magazine Reach Out
- Providing phone and email support
- Organising and hosting educational events throughout Australia
- Advocate for improved services and treatment for families affected by TSC
- Fund research into TSC in Australia
Our donors have also allowed us to complete these major research projects:
- SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
- Funding an Australian clinical trial into a new medicine for the signs of TSC on the skin
The vast majority of your money goes directly to these services. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes to support people living with TSC. Your support, however big or small, is greatly appreciated.
