Many families face daily challenges because of Tuberous Sclerosis Complex (TSC).

Will you be a #Hero4TSC in honour of the person you know with TSC?

TSA will work with you to help inspire your family, friends and colleagues to donate in your honour of your family or the person you know with TSC to help everyone living with TSC under an individual #Heroes4TSC campaign.

Many TSC families already support our work in a variety of ways for which we are enormously grateful. Now we are making it even easier to encourage your family and friends to donate. Your help will have a big impact on our work.

Join our TSC families who have set up a hero campaign. It’s simple!

Step1: Contact us or complete the registration form below. You’ll need to provide a photo of the person you know with TSC. Perhaps you could approach a local photographer to do a pro-bono photo shoot for your family.

Step 2: We will set up an online fundraising page with your photos, a campaign poster, and a unique campaign name under #Heroes4(insert-name-of-loved-one-with-TSC). Click here to see an example.

Step3: Select how you wish to support TSA. The options are endless and you can do as many as you like:

  • Online donation page / fundraising appeal
  • Celebrate a special occasion by collecting donations in lieu of gifts eg Christmas, birthdays, christenings
  • Hold a fundraising event (big or small) like a Bunnings BBQ, Trivia Night or something else
  • Take on a physical challenge like joining a fun run, or climbing Mt Everest

Step 4: Share your campaign with family, friends and colleagues and ask them to be a hero for the person they know with TSC by making a donation in their honour. You can do this in person, via social media, event invitations or email.

Step 5: Update your supporters with how much has been donated in honour of your family to help people living with TSC. Don’t forget to thank them for being Heroes4TSC.

Be a hero for people with TSC today by registering your interest in creating a #Heroes4TSC.

I want to create a hero campaign

We're excited to have you join the #Tatts4TSC activites for Global Awareness Day. We'll be in touch soon!
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How your donation helps

$50    allows us to answer a single support or information request

Families contact us by phone, email and social media. We provide accurate and up to date information about various aspects of TSC. We can also refer them to resources that can help them such as a medical professional with TSC knowledge in their area

$125    allows an individual with TSC or their carer to attend an information event

Our face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet others living with TSC. These can be life changing experiences for many.

$450    allows us to update one of our medical information pages

Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research means that these information pages require regular revision.

Your donation will also help us to provide these services to families living with TSC:

  • Maintain this website, the only online source of TSC information for families living in Australia
  • Publishing and printing our magazine Reach Out
  • Providing phone and email support
  • Organising and hosting educational events throughout Australia
  • Advocate for improved services and treatment for families affected by TSC
  • Fund research into TSC in Australia

Our donors have also allowed us to complete these major research projects:

  • SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
  • Funding an Australian clinical trial into a new medicine for the signs of TSC on the skin

The vast majority of your money goes directly to these services. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes to support people living with TSC. Your support, however big or small, is greatly appreciated.

You can also donate now to our #Heroes4TSC campaign.

#Heroes4TSC

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#Heroes4Kristian has raised $4,600
#Heroes4Samuel has raised $2,100