Be a #Hero4TSC - Tuberous Sclerosis Australia

Many families face daily challenges because of Tuberous Sclerosis Complex (TSC).

Will you be a #Hero4TSC in honour of the person you know with TSC?

TSA will work with you to help inspire your family, friends and colleagues to donate in your honour of your family or the person you know with TSC to help everyone living with TSC under an individual #Heroes4TSC campaign.

Your help will have a big impact on our work. Set up a #Heroes4 campaign. It’s simple!

Step 1: Contact us or complete the registration form below. You’ll need to provide a photo of the person you know with TSC. Perhaps you could approach a local photographer to do a pro-bono photo shoot for your family.

Step 2: We will set up an online fundraising page with your photos, a campaign poster, and a unique campaign name under #Heroes4(insert-name-of-loved-one-with-TSC). Click here to see an example.

Step 3: Select how you wish to support TSA. The options are endless and you can do as many as you like:

Online donation page / fundraising appeal
Celebrate a special occasion by collecting donations in lieu of gifts eg Christmas, birthdays, christenings
Hold a fundraising event (big or small) like a Bunnings BBQ, Trivia Night or something else
Take on a physical challenge like joining a fun run or climbing Mount Everest

Step 4: Share your campaign with family, friends and colleagues and ask them to be a #Hero for the person they know with TSC by making a donation in their honour. You can do this in person, via social media, event invitations or email.

Step 5: Update your supporters with how much has been donated in honour of your family to help people living with TSC. Don’t forget to thank them for being #Heroes4TSC.

Register your interest in creating a #Heroes4TSC campaign

I want to create a #Hero campaign

We're excited to have you join the #Heroes4TSC. We'll be in touch soon!

How your donation helps

$50 allows us to answer a single support or information request

Our TSC Information Service provides free advice to those affected by TSC. One call from a family about the importance of early diagnosis and intervention treatments and how to access them can change their child’s life.

$100 allows an individual with TSC or their carer to attend an information event

Our virtual and face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet other people living with TSC. These connections can be life-changing and can help to reduce the sense of isolation.

$250 allows us to update one of our medical information pages

Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research mean that these information pages require regular revision.

Your donation today will help us continue to provide our trusted information and support services for free to everyone affected by TSC by:

Maintaining this website, the only online source of accurate and up to date TSC information in Australia
Publishing and printing our magazine Reach Out twice a year
Providing a TSC Nurse service offering telehealth phone and email support
Organising and hosting educational events online for everyone in Australia
Advocating for improved services and treatment for families affected by TSC
Ensuring TSC affected individuals have access to all the latest global research and advancements in TSC.

Our donors have enabled TSA to champion many life-changing projects in Australia including:

Publishing a picture book to help children understand TSC
Funding an Australian clinical trial into a new medicine for TSC skin tumours (angiofibromas)
Creating New Diagnosis Parachute Packs for families receiving a new diagnosis of TSC
Development of a SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
Launching the In Safe Hands Education Resources to help teachers and educators understand how TSC may affect how a child learns.
mTOR inhibitor medicines for TSC added to the PBS (Australian Pharmaceutical Benefits Scheme).TSA led the consumer advocacy project to help decision makers understand the impact this medicine can have on those living with TSC.

To find out more about how your donations make a difference, click here to read our latest annual report.

The vast majority of your contributions go directly to providing these important services and research. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes directly to support people living with TSC. Your support, however big or small, is greatly appreciated.

You can also donate now to #Heroes4TSC.

#Heroes4TSC

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