This year Logan and I are participating in a walking challenge to raise funds for an organisation that is close to my heart.

You may not already know that I live with a rare genetic disease called Tuberous Sclerosis Complex (TSC).

Tuberous Sclerosis Complex is a disease where tumours can grow on any organ of the body and can lead to unstoppable epilepsy, autism and brain tumours. While there is no cure, most people living with TSC can live fulfilling lives with the right management and treatment – although there is no crystal ball to predict how you may be affected and tumours can start growing on the body’s major organs at any time including the kidneys, brain, heart and lungs.

Throughout October, Logan and I will be challenging ourselves to walk 300km to help other children, adults and families impacted by TSC. We are asking our family and friends to please support us by donating, sharing this page and my story. All funds raised will be donated to Tuberous Sclerosis Australia who do an amazing job helping and supporting families like ours affected by this complex disease.

Please join our team of TSC Heroes fighting to improve the diagnosis and treatments for the 2,500 individuals living with TSC in Australia. Your donation will help TSA’s work to ensure families are informed, connected, supported and empowered and that no one has to face the challenges of TSC alone.

It would mean so much to us if you would please donate now.

Thank you so much, Melanie xx


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Amount Raised

$ 3,400.00
100% raised of $ 1,000.00 Goal
42 donation(s)

Melanie’s TSC Heroes

Melanie Mak
Amy Peddie
Meagan Patmore
Michelle Hutton
Liz Atlee
Ross Gersbach
Janna Taueki
Elise Ingegneri
Rebecca Langridge
Claire Vergnano
Debbie Leven
Marina Zafirovski
Rebecca Colwell
H Wakeford
Danii Curry
Katie Bennett
Tracey Townsend
Joye Long
Kathy Shields
Kaye South
Linda Parsons
Lyndsey Martyn
Gaye Glachan
Erin and David Schimpf
Anne Moussa
Kaye South
N Linehan
Alexandra Mudeliar
Matthew Dean-Willcocks
Deborah Hooper
Tanya Murupaenga
Lindsey Leehy
Laura Brown
Danielle Lane
Claire Harrison
Joanne Maguire
James and Tanya
Aymee Sly
Courtney Flint
Amy Pearce
David Mak

How your donation helps

$50    allows us to answer a single support or information request

Our TSC Information Service provides free advice to those affected by TSC.  One call from a family about the importance of early diagnosis and intervention treatments and how to access them can change their child’s life.

$100    allows an individual with TSC or their carer to attend an information event

Our virtual and face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet other people living with TSC. These connections can be life-changing and can help to reduce the sense of isolation.

$250    allows us to update one of our medical information pages

Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research mean that these information pages require regular revision.

Your donation today will help us continue to provide our trusted information and support services for free to everyone affected by TSC by:

  • Maintaining this website, the only online source of accurate and up to date TSC information in Australia
  • Publishing and printing our magazine Reach Out twice a year
  • Providing a TSC Nurse service offering telehealth phone and email support
  • Organising and hosting educational events online for everyone in Australia
  • Advocating for improved services and treatment for families affected by TSC
  • Ensuring TSC affected individuals have access to all the latest global research and advancements in TSC.

Our donors have enabled TSA to champion many life-changing projects in Australia including:

  • Publishing a picture book to help children understand TSC
  • Funding an Australian clinical trial into a new medicine for TSC skin tumours (angiofibromas)
  • Creating New Diagnosis Parachute Packs for families receiving a new diagnosis of TSC
  • Development of a SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
  • Launching the In Safe Hands Education Resources to help teachers and educators understand how TSC may affect how a child learns.
  • Advocating for mTOR inhibitor medicines for TSC added to the PBS (Australian Pharmaceutical Benefits Scheme).

To find out more about how your donations make a difference, click here to read our latest annual report.

The vast majority of your contributions go directly to providing these important services and research. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes directly to support people living with TSC. Your support, however big or small, is greatly appreciated.