You may already know a little of the challenges our family has faced because of Tuberous Sclerosis Complex (TSC).

We’ve had more than our fair share of hospital stays, medical appointments, medications and therapies to make sure my daughter has all the support she needs. We are full of thanks for the amazing information and support from our medical teams, family, friends, strangers and the team at Tuberous Sclerosis Australia.

We believe so much in the work of TSA who help families like ours affected by this complex disease.

You can join our fight to raise awareness and funds for this rare disease and help improve the diagnosis and treatments for children like my daughter by making a donation today.

To mark TSC Global Awareness Day in 2022 we are supporting TSA’s Light the Way Giving Day appeal. Please help TSA continue to provide a beacon of light and hope for families like ours.

It would mean so much to us if you would help by giving generously if you can.

Thank you so much,

Rachel xx

p.s.Tuberous Sclerosis Australia receives no ongoing government funding and relies solely on your generosity to provide vital information, support and advocacy services plus champion research so one day we may find a cure for this devastating disease.


Rachel's #Heroes4TSC

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How your donation helps

$50    allows us to answer a single support or information request

Families contact us by phone, email and social media. We provide accurate and up to date information about various aspects of TSC. We can also refer them to resources that can help them such as a medical professional with TSC knowledge in their area

$125    allows an individual with TSC or their carer to attend an information event

Our face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet others living with TSC. These can be life changing experiences for many.

$450    allows us to update one of our medical information pages

Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research means that these information pages require regular revision.

Your donation will also help us to provide these services to families living with TSC:

  • Maintain this website, the only online source of TSC information for families living in Australia
  • Publishing and printing our magazine Reach Out
  • Providing phone and email support
  • Organising and hosting educational events throughout Australia
  • Advocate for improved services and treatment for families affected by TSC
  • Fund research into TSC in Australia

Our donors have also allowed us to complete these major research projects:

  • SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
  • Funding an Australian clinical trial into a new medicine for the signs of TSC on the skin

The vast majority of your money goes directly to these services. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes to support people living with TSC. Your support, however big or small, is greatly appreciated.