Thank you to Alana’s team of heroes who have already raised $4,475 to help families like ours.

Dear Friend,

You may already know a little of the challenges that Alana has already faced in her life because of tuberous sclerosis complex (TSC).

You may have seen how our family has had more than our fair share of hospital stays, medical appointments and battles to make sure Alana has all the support she needs.

If you want to help us but are not sure how, here’s what we want you to do. Please make a gift in Alana’s honour to support all Australians living with TSC.

Join our fight to improve the diagnosis and treatments for children like Alana.

We believe so much in the work of Tuberous Sclerosis Australia, Debbie has been volunteering her time both as President and as a support person speaking with families living with this complex condition. Your contribution will help children with TSC in Australia now and in the future.

It would mean so much to us if you would please donate now.

Thank you so much,

Anthony and Deb xx

p.s.Tuberous Sclerosis Australia receives no government funding and rely solely on your generosity to provide vital information, support and advocacy services plus champion research so one day we may find a cure for this devastating disease.

How your donation helps

$50    allows us to answer a single support or information request

Families contact us by phone, email and social media. We provide accurate and up to date information about various aspects of TSC. We can also refer them to resources that can help them such as a medical professional with TSC knowledge in their area

$125    allows an individual with TSC or their carer to attend an information event

Our face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet others living with TSC. These can be life changing experiences for many.

$450    allows us to update one of our medical information pages

Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research means that these information pages require regular revision.

Your donation will also help us to provide these services to families living with TSC:

  • Maintain this website, the only online source of TSC information for families living in Australia
  • Publishing and printing our magazine Reach Out
  • Providing phone and email support
  • Organising and hosting educational events throughout Australia
  • Advocate for improved services and treatment for families affected by TSC
  • Fund research into TSC in Australia

Our donors have also allowed us to complete these major research projects:

  • SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
  • Funding an Australian clinical trial into a new medicine for the signs of TSC on the skin

The vast majority of your money goes directly to these services. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes to support people living with TSC. Your support, however big or small, is greatly appreciated.


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We like to thank our donors publicly, such as in our annual report. However if you would prefer us not to, we can keep your donation anonymous.