Thank you for being interested in raising vital funds for Tuberous Sclerosis Australia. Here are some ideas of how you can get involved in fundraising:

  • Hold a morning tea at your workplace. We can assist with information and posters to help explain TSC to your colleagues.
  • Ask for donations to TSA in leiu of presents at a birthday party or other celebration. Ian Webb, whose grand-daughter Chelsea has Tuberous Sclerosis, recently raised $3600 at his 60th birthday party.
  • Run, swim or cycle in your favourite event. Jeff, whose daughter Zarah has TSC, ran a triathlon with friends and raised more than $45,000.

Here’s how to get started

  1. Find out how we can help. Our Community Fundraising Guide is a good starting point
  2. Either create a page at Everyday Hero
  3. Or you can fill out our one page Registration Form and let us know how you’d like to run your event.

We’re excited that you’re interested in fundraising and happy to chat about your plans, so contact us.

Community Fundraising Guide

Thank you for helping us raise funds for Tuberous Sclerosis Australia (TSA). Your support enables our volunteers and staff to support families all around Australia who are given the devastating diagnosis of Tuberous Sclerosis Complex (TSC).
Before you start, you need to review these guidelines to make sure your event is not only successful and fun, but that it is also legal and safe.

How we support your fundraising

TSA is a small, mostly volunteer run organisation. We’re happy to hear your ideas for fundraising and work with you
to make them a reality. Some examples of how we can help you include:

  • Providing a DVD with stories of families affected by TSC
  • Providing printed brochures about TSC and TSA
  • Providing a volunteer speaker for an event
  • Receipting donations, including through the Everyday Hero platform, our website or even face to face.

We’re also happy to discuss your fundraising ideas and find other ways we can help you.

We give you authority to fundraise

TSA is legally required to approve and authorise all volunteer fundraising activities. If you are not using Everday hero or if you are running your own fundraising event, you need to:

  1. Fill out the Community Fundraising Registration Form
  2. Send us a copy of your drivers license, passport of other identity document.

We will then review your planned activity. There are some activities for which we will not provide approval or support. For example:

  • Events that are high risk;
  • Events that do not fit with the values or integrity of TSA;
  • Events that involve gaming, lotteries or raffles, because there are separate, complex, rules governing these types of activities;
  • Door knocking, because in most parts of Australia special permits are required;
  • Fundraising directly involving children.

We will discuss your activity with you if we have any concerns. In most cases we will send you an Authority to Fundraise letter. You will need to keep this letter with you when you are fundraising on behalf of TSA.
You, as the fundraiser, are solely responsible for your activity. This includes management of the event, finances, prizes and publicity.

Promoting your event

We’d like to help you to explain TSC and the work of TSA to your donors. We can help to draft any materials you need, any media releases and supply logo files. Please discuss this with one of the TSA volunteers.

Money matters

If your fundraising event incurs expenses and only the net proceeds will be given to TSA, you should discuss this with us. The following guidelines apply:

In most cases, TSA cannot pay directly for your expenses. You can deduct your expenses from the funds you collect.

  • You must submit a budget to TSA along with your Community Fundraising Application Form.
  • Unless otherwise agreed with us, you must achieve a net profit of 70% of all funds raised at any event.
  • You must keep accurate financial records including an explanation of all expenses associated with your event.
  • You must document both the income and expenses on the Community Fundraising Completion form within 14 days of your fundraising event

If your fundraising involves donating a fixed percentage of the sale of goods or services, you can provide TSA with a regular statement of the amount of money collected from sales and the amount being donated to TSA. This money can be directly transferred into the TSA bank account or a cheque can be sent to TSA.

To provide a tax receipt to your donors, you will need to do one of the following:

  1. You can use an online fundraising platform to collect donations. These websites can email a receipt directly to the donor.The two that TSA is registered with are Everyday Hero and myCause. We will consider registering with more platforms; let us know which one you’d like to use.
  2. You can ask your donor to donate via the TSA website. Our website will email a receipt directly to them. We can create a page just for your event.
  3. You can fill out their details on a Donor List and collect the donation from them in cash or a cheque. We can either email or mail a receipt to them.

Public Liability Insurance

If you are holding an event, it is important to ensure there is public liability insurance in place. TSA has an insurance policy that
may be used in some circumstances. Please discuss any events that you may be holding or participating in with one of the TSA volunteers to ensure there is adequate insurance in place.

Other things to consider

If you are seeking the support of any corporate sponsors, we would like to be involved. These relationships have the potential to be a long term asset to TSA.

I’m ready, what’s the next step?

Download and return the Community Fundraising Registration form and we’ll take it from there. We look forward to supporting your fundraising.

Crowd buying raffle tickets at the 2011 Gala Fundraising Dinner
Buying raffle tickets at the 2011 Gala Fundraising Dinner
The TSC Heroes team after their 2014 triathlon
The TSC Heroes team after their 2014 triathlon
Such an amazing fundraising effort from the TSC Heroes
An amazing fundraising result from the TSC Heroes