Thank you for your interest in raising vital funds to help people living with the rare and often devastating disease, Tuberous Sclerosis Complex (TSC).  Here are some simple ideas about how you can get involved in fundraising for TSA:

  • Become a TSC Hero. Sign up for a personal challenge. You could run, swim or cycle and collect donations from your family and friends. Set a challenge or join a fun run or triathlon. Thanks to Jeff Place, our founding TSC Hero, over $100,000 has now been donated to TSA by our TSC Heroes. You can join the team too, just click here TSC Heroes
  • Create a #Heroes4TSC donation campaign. If you’d like to collect donations in honour of your loved one with TSC we can help by creating a #Heroes4TSC fundraising campaign. Find out more at #Heroes4TSC
  • Host a fundraiser: Go digital or host a face to face event if COVID-19 restrictions allow, like a dinner or trivia night, with raffles and auctions and all proceeds donated to TSA. We can help with creating online donation pages, TSC information, videos, stories, and posters to help explain TSC to your guests. Just download and return the Community Fundraising Registration form
  • TSC Global Awareness Day is held on May 15. Help raise awareness and funds by sharing your story on social media and adding a donate button to inspire your friends to donate. Find out more at TSC Global Awareness Day,
  • Request donations to TSA in lieu of presents at a birthday party or other celebration. Ian Webb, whose grand-daughter Chelsea has TSC, recently raised $3,600 at his 60th birthday party. Find out more about In Celebration Fundraising
  • School fundraisers. Contact your child’s school about a holding a gold coin collection fundraiser. Perhaps suggest a “Wear blue for TSA” day. Check out our Schools Community Fundraising Guide.

Here’s how to get started:

  1. Find out how we can help. Our Community Fundraising Guide is a good starting point
  2. Create a fundraising page at mycause
  3. Or you can fill out our one page Registration Form and let us know how you’d like to get involved.

We’re excited that you’re interested in fundraising and happy to chat about your plans, so please contact us.

Community Fundraising Guide

Thank you for helping us raise funds for Tuberous Sclerosis Australia (TSA). Your support enables our volunteers and staff to support families all around Australia who are given the devastating diagnosis of Tuberous Sclerosis Complex (TSC).
Before you start, you need to review these guidelines to make sure your event is not only successful and fun, but that it is also legal and safe.

How we support your fundraising

TSA is a small, mostly volunteer run organisation. We’re happy to hear your ideas for fundraising and work with you
to make them a reality. Some examples of how we can help you include:

  • Designing an individualised donation page for your event or collection
  • Providing a DVD with stories of families affected by TSC
  • Providing printed brochures about TSC and TSA
  • Providing a volunteer speaker for an event
  • Receipting donations, including through the mycause platform, our website or even face to face.

We’re also happy to discuss your fundraising ideas and find other ways we can help you.

We give you authority to fundraise

TSA is legally required to approve and authorise all volunteer fundraising activities. If you are not using Everday hero or if you are running your own fundraising event, you need to:

  1. Fill out the Community Fundraising Registration Form
  2. Send us a copy of your drivers license, passport of other identity document.

We will then review your planned activity. Keep in mind there may be some activities for which we will not provide approval or support. For example:

  • Events that are high risk;
  • Events that do not fit with the values or integrity of TSA;
  • Events that involve gaming, lotteries or raffles, because there are separate, complex, rules governing these types of activities;
  • Door knocking, because in most parts of Australia special permits are required;
  • Fundraising directly involving children.

We will discuss your activity with you if we have any concerns. In most cases we will send you an Authority to Fundraise letter. You will need to keep this letter with you when you are fundraising on behalf of TSA.
You, as the fundraiser, are solely responsible for your activity. This includes management of the event, finances, prizes and publicity.

Promoting your event

We’d like to help you to explain TSC and the work of TSA to your donors. We can help to draft any materials you need, any media releases and supply logo files. Please discuss this with one of the TSA team.

Money matters

If your fundraising event incurs expenses and only the net proceeds will be given to TSA, you should discuss this with us. The following guidelines apply:

In most cases, TSA cannot pay directly for your expenses. You can deduct your expenses from the funds you collect.

  • You must submit a budget to TSA along with your Community Fundraising Application Form.
  • Unless otherwise agreed with us, you must achieve a net profit of 70% of all funds raised at any event.
  • You must keep accurate financial records including an explanation of all expenses associated with your event.
  • You must document both the income and expenses on the Community Fundraising Completion form within 14 days of your fundraising event

If your fundraising involves donating a fixed percentage of the sale of goods or services, you can provide TSA with a regular statement of the amount of money collected from sales and the amount being donated to TSA. This money can be directly transferred into the TSA bank account or a cheque can be sent to TSA.

To provide a tax receipt to your donors, you will need to do one of the following:

  1. You can use an online fundraising platform to collect donations. The website can email a receipt directly to the donor. The one  that TSA is registered with is myCause. We will consider registering with more platforms; let us know which one you’d like to use.
  2. You can ask your donor to donate via the TSA website. Our website will email a receipt directly to them. We can create a page just for your event.
  3. You can fill out their details on a Donor List and collect the donation from them in cash or a cheque. We can either email or mail a receipt to them.

Public Liability Insurance

If you are holding an event, it is important to ensure there is public liability insurance in place. TSA has an insurance policy that
may be used in some circumstances. Please discuss any events that you may be holding or participating in with one of the TSA volunteers to ensure there is adequate insurance in place.

Other things to consider

If you are seeking the support of any corporate sponsors, we would like to be involved. These relationships have the potential to be a long term asset to TSA.

I’m ready, what’s the next step?

Download and return the Community Fundraising Registration form and we’ll take it from there. We look forward to supporting your fundraising.

TSC Hero Kate takes on a Triathlon in Sydney in 2019
Kalymnian Club raised $4,600 for Tuberous Sclerosis Australia at their annual Car and Bike Show on Sunday 31 March, 2019.
The Patriarchs and Hard Loves Charity Band Night 2017
TSC Hero Cynara at Perth’s Run for a Reason
Ironman 70.3 Western Sydney, 2016
Such an amazing fundraising effort from the TSC Heroes
An amazing fundraising result from the TSC Heroes