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Help NSW Health improve their storage of genetic counselling data

Category: Research News | 1

Invitation to TSC families in NSW and ACT to participate in this focus group study.

Genetic counselling and your family health information: Its collection and storage

If you are aged 18 years or over, speak English and you have ever attended a genetic clinic/genetic counselling service in NSW or the ACT for yourself and/or your child(ren), you are invited to participate in a Master of Genetic Counselling research study. The study will involve attending a focus group to explore your views in regard to how genetic and family information is stored and used in the genetic counselling services.

We are interested in the views of individuals who have attended a genetic clinic/genetic counselling service regardless of whether genetic testing has been accessed.

The focus group will take about two hours and be held in the Kolling Institute near Royal North Shore Hospital, St Leonards, NSW or at the Garvan Institute near St Vincent’s Hospital, Darlinghurst, NSW.

If you would like to participate, or to find out more, please contact the student researcher Catherine Speechly at cspe9821@uni.sydney.edu.au or by leaving a message for Catherine with the Master of Genetic Counselling program on 0481 012 853.

One Response

  1. Lulu
    | Reply

    I have a daughter with ts she is 23.

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