The newly updated clinical consensus guidelines for the diagnosis, surveillance and management of tuberous sclerosis complex (TSC) have been published. This major revision reflects the significant medical advances since the first guidelines were published in 1998.
To communicate the recommendations to healthcare professionals, the October issue of Pediatric Neurology includes two peer-reviewed papers detailing the new guidelines – one entitled “Tuberous Sclerosis Complex Diagnostic Criteria Update: Recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference” and the other, “Tuberous Sclerosis Complex Surveillance and Management: Recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference.”
Darcy A. Krueger, MD, PhD, of Cincinnati Children’s Hospital Medical Center, and Hope Northrup, MD, of The University of Texas Medical School at Houston, wrote both papers in Pediatric Neurology. Drs. Krueger and Northrup served as co-chairs of the TSC International’s 2012 International TSC Consensus Conference, which involved 79 TSC experts from 14 countries to develop the new guidelines. Dr David Mowat, ATSS Medical Advisor, was selected to participate in the genetics committee.
ATSS is working with other TSC organisations around the world to promote these guidelines to health professionals and provide easy to understand information for TSC families about the guidelines. You can read the published articles by clicking on the links below:
Northrup, H., et al., Tuberous sclerosis complex diagnostic criteria update: recommendations of the 2012 international tuberous sclerosis complex consensus conference Pediatric Neurology (October 2013)
Krueger, D.A., et al., Tuberous sclerosis complex surveillance and management: recommendations of the 2012 international tuberous sclerosis complex consensus conference Pediatric Neurology (October 2013)