Please consider giving a tax time donation to Tuberous Sclerosis Australia.

With your help and generosity, we can make sure individuals and families impacted by the devastating rare disease, Tuberous  Sclerosis Complex (TSC) can continue to access the support they need from Tuberous Sclerosis Australia (TSA) such as:

  • A dedicated TSC nurse providing information, support and advice on treatment options
  • Opportunities for individuals and families to be involved in new research
  • A trusted TSC website with accurate information on the disease and new treatments and global research updates
  • Connections to other people who also live with TSC – someone who understands and may be able to provide some insights and hope for the future

TSA’s goal is to ensure every child born with TSC has access to early diagnosis and interventions. And that every individual and family impacted by TSC is supported, informed and connected so no one has to face the challenges of TSC alone.

Please donate today to help TSA provide life-changing programs and services that will help the thousands of families impacted by TSC across Australia. Your donations will help fund TSA’s critical services including a free telehealth nurse and ensure every individual with TSC has access to all the latest global research and advancements in TSC to ensure the best possible hope for the future.

TSA receive no ongoing government funding and rely on your generous donations to continue our work informing, connecting and empowering people living in Australia with TSC.

Will you make a difference for individuals and families impacted by TSC by giving a tax time donation today? 

How your donation helps
$50    allows us to answer a single support or information request

Our TSC Information Service provides free advice to those affected by TSC.  One call from a family about the importance of early diagnosis and intervention treatments and how to access them can change their child’s life.

$100    allows an individual with TSC or their carer to attend an information event

Our virtual and face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet other people living with TSC. These connections can be life-changing and can help to reduce the sense of isolation.

$250    allows us to update one of our medical information pages

Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research mean that these information pages require regular revision.

Your donation today will help us continue to provide our trusted information and support services for free to everyone affected by TSC by:

  • Maintaining this website, the only online source of accurate and up to date TSC information in Australia
  • Publishing and printing our magazine Reach Out twice a year
  • Providing a TSC Nurse service offering telehealth phone and email support
  • Organising and hosting educational events online for everyone in Australia
  • Advocating for improved services and treatment for families affected by TSC
  • Ensuring TSC affected individuals have access to all the latest global research and advancements in TSC.

Our donors have enabled TSA to champion many life-changing projects in Australia including:

  • Publishing a picture book to help children understand TSC
  • Funding an Australian clinical trial into a new medicine for TSC skin tumours (angiofibromas)
  • Creating New Diagnosis Parachute Packs for families receiving a new diagnosis of TSC
  • Development of a SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
  • Launching the In Safe Hands Education Resources to help teachers and educators understand how TSC may affect how a child learns.
  • Advocating for mTOR inhibitor medicines for TSC added to the PBS (Australian Pharmaceutical Benefits Scheme).

To find out more about how your donations make a difference, click here to read our latest annual report.

The vast majority of your contributions go directly to providing these important services and research. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes directly to support people living with TSC. Your support, however big or small, is greatly appreciated.

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