In this issue of Research Round Up we have included summaries of two significant new papers were published in the last quarter:

The updated International Tuberous Sclerosis Complex Diagnostic Criteria and Surveillance and Management Recommendations

The companion TSCi paper Beyond the Guidelines: How We Can Improve Healthcare for People with Tuberous Sclerosis Complex Around the World

We would also like to thank Clare Stuart, Former General Manager of TSA, who was one of the authors of the TSCi paper for participating in an interview with us. You can watch the interview with Clare here.

You can find out more about the updated guidelines by attending our TAND+ Virtual Conference on 20 November. Find more details here.

Note: TSA is in the process of updating information and resources on its website to reflect the updates in the guidelines.

Updated International Guidelines for TSC

The international guidelines provide the 'gold standard' for TSC diagnosis, surveillance and management. These are the first significant updates since 2013 and reflect advances in knowledge and approvals of new therapies.

Read more

Beyond the Guidelines: How We Can Improve Healthcare for People with TSC Around the World

Beyond the Guidelines examines the state of TSC care around the world, identifies gaps in TSC care and makes recommendations on how TSC organisations and key stakeholders can work together to overcome barriers in TSC care.

Read more

DISCLAIMER

This information is intended to provide some insights into recent TSC-related research. It is not intended to, and it should not, constitute medical or other advice. Readers are warned not to take any action without first seeking medical advice.

FURTHER INFORMATION

Citations (and links where possible) to the full research articles/papers are included for those who would like to know more.

You can unsubscribe to this newsletter at any time by clicking the unsubscribe option at the top of this email or to opt out of all TSA mailings click here.