Tuberous Sclerosis Complex is a disease where tumours can grow on any organ of the body and can lead to unstoppable epilepsy, autism and brain tumours. While there is no cure, most people living with TSC can live fulfilling lives with the right management and treatment – although there is no crystal ball to predict how you may be affected and tumours can start growing on the body’s major organs at any time including the kidneys, brain, heart and lungs.
Throughout October, we are raising awareness and funds to help other children, adults and families impacted by TSC. We are asking our customers, suppliers, family and friends to please support us by donating. All funds raised will be donated to Tuberous Sclerosis Australia who do an amazing job helping and supporting families affected by this complex disease.
Please join us in our fight to improve the diagnosis and treatments for the 2,500 individuals living with TSC in Australia. Your donation will help TSA’s work to ensure families are informed, connected, supported and empowered and that no one has to face the challenges of TSC alone.
It would mean so much to us if you would please donate now.
Thank you so much, Dennis, Mira and all the team at Brew Ha Ha
Please donate now
Amount Raised
Honour Roll
How your donation helps
$50 allows us to answer a single support or information request
Our TSC Information Service provides free advice to those affected by TSC. One call from a family about the importance of early diagnosis and intervention treatments and how to access them can change their child’s life.
$100 allows an individual with TSC or their carer to attend an information event
Our virtual and face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet other people living with TSC. These connections can be life-changing and can help to reduce the sense of isolation.
$250 allows us to update one of our medical information pages
Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research mean that these information pages require regular revision.
Your donation today will help us continue to provide our trusted information and support services for free to everyone affected by TSC by:
- Maintaining this website, the only online source of accurate and up to date TSC information in Australia
- Publishing and printing our magazine Reach Out twice a year
- Providing a TSC Nurse service offering telehealth phone and email support
- Organising and hosting educational events online for everyone in Australia
- Advocating for improved services and treatment for families affected by TSC
- Ensuring TSC affected individuals have access to all the latest global research and advancements in TSC.
Our donors have enabled TSA to champion many life-changing projects in Australia including:
- Publishing a picture book to help children understand TSC
- Funding an Australian clinical trial into a new medicine for TSC skin tumours (angiofibromas)
- Creating New Diagnosis Parachute Packs for families receiving a new diagnosis of TSC
- Development of a SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
- Launching the In Safe Hands Education Resources to help teachers and educators understand how TSC may affect how a child learns.
- Advocating for mTOR inhibitor medicines for TSC added to the PBS (Australian Pharmaceutical Benefits Scheme).
To find out more about how your donations make a difference, click here to read our latest annual report.
The vast majority of your contributions go directly to providing these important services and research. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes directly to support people living with TSC. Your support, however big or small, is greatly appreciated.
$50 allows us to answer a single support or information request
Our TSC Information Service provides free advice to those affected by TSC. One call from a family about the importance of early diagnosis and intervention treatments and how to access them can change their child’s life.
$100 allows an individual with TSC or their carer to attend an information event
Our virtual and face to face events provide an opportunity for people affected by TSC to learn more about the disease and meet other people living with TSC. These connections can be life-changing and can help to reduce the sense of isolation.
$250 allows us to update one of our medical information pages
Our medical information pages are the only source of accurate TSC information tailored to the needs of TSC patients and their families in Australia. The significant achievements of TSC research mean that these information pages require regular revision.
Your donation today will help us continue to provide our trusted information and support services for free to everyone affected by TSC by:
- Maintaining this website, the only online source of accurate and up to date TSC information in Australia
- Publishing and printing our magazine Reach Out twice a year
- Providing a TSC Nurse service offering telehealth phone and email support
- Organising and hosting educational events online for everyone in Australia
- Advocating for improved services and treatment for families affected by TSC
- Ensuring TSC affected individuals have access to all the latest global research and advancements in TSC.
Our donors have enabled TSA to champion many life-changing projects in Australia including:
- Publishing a picture book to help children understand TSC
- Funding an Australian clinical trial into a new medicine for TSC skin tumours (angiofibromas)
- Creating New Diagnosis Parachute Packs for families receiving a new diagnosis of TSC
- Development of a SEALS Genetic Diagnostic Laboratory, the first laboratory in Australia to offer genetic testing for TSC
- Launching the In Safe Hands Education Resources to help teachers and educators understand how TSC may affect how a child learns.
- Advocating for mTOR inhibitor medicines for TSC added to the PBS (Australian Pharmaceutical Benefits Scheme).
To find out more about how your donations make a difference, click here to read our latest annual report.
The vast majority of your contributions go directly to providing these important services and research. Much of our work is done by volunteers, working in their homes. This keeps our costs low, and ensures your money goes directly to support people living with TSC. Your support, however big or small, is greatly appreciated.