Welcome to TSC talk with Kim which aims to share information about common issues our TSC Community reach out to our Nurse Service seeking help for. We hope that by anonymously sharing some of these questions and answers we can better inform you about some of the shared struggles our TSC Community may experience.
The www.friendlyfaces.info website provides country people and their families / carers, with practical information about hospitals, accommodation and support services when healthcare is required in an unfamiliar city a long way from home. Statistics show that each year, almost 600 rural residents in NSW alone suffer a serious trauma which requires lengthy hospitalisation in a location far from home.
The rights of children with disability and medical conditions to safe and accessible transport are not equal to children without disability. Mobility and Accessibility for Children in Australia Inc. (MACA) is a not-for-profit organisation dedicated to supporting and advocating for … Read More
People with TSC and intellectual disability often have more health problems. Many of these health needs can be met by GPs, but sometimes a specialised approach is needed. The good news is that NSW Health has recently announced that Specialised … Read More
Epilepsy Action Australia has recently launched a new service for Australians living with epilepsy. This is great news for families affected by Tuberous Sclerosis Complex many of whom live with epilepsy too. Please connect with this service should you have any questions around yours or your child’s epilepsy.