About this paper The international guidelines provide the ‘gold standard’ for TSC diagnosis, surveillance and management. These are the first significant updates since 2013 and reflect advances in knowledge and approvals of new therapies. What was the process used to … Read More
The TSC Alliance in the USA and its medical advisory committee has recently provided an updated COVID-19 Vaccine position Statement. You can click here to read it in full. Whilst the situation in Australia regarding vaccine approvals and availability is … Read More
TSA is delighted to announce that Dr Freyja Page, a General Practitioner in Townsville, is the winner of the 2021 Elizabeth Pinkerton Memorial Award. This award is given annually by TSA to a health professional in recognition of their efforts … Read More
Congratulations and thanks to Clare Stuart, TSA’s former General Manager, for all her work on “Beyond the Guidelines: How We Can Improve Healthcare for People with Tuberous Sclerosis Complex from Around the World.” This paper, which has just been published, … Read More
Congratulations to the team involved in the first significant updates to the clinical consensus guidelines for the diagnosis, surveillance and management of tuberous sclerosis complex (TSC) since 2013. The new guidelines, which have just been published, take into account new … Read More
Dr Kate Riney and the team at Queensland Children’s Hospital are currently recruiting patients for a formal phase II/III trial of topical rapamycin (sirolimus) for facial angiofibromas. Some funding for interstate travel is available, making this trial available for eligible … Read More
Epilepsy develops in 70-90% of children with TSC and it is often resistant to medication. This study investigated the potential benefits of early (preventive) treatment with vigabatrin to prevent TSC-related seizures.
Epilepsy develops in 70-90% of children with TSC and it is often resistant to medication. This study investigated the potential benefits of early (preventive) treatment with vigabatrin to prevent TSC-related seizures.
