Many children are affected by drug-resistant epilepsy (DRE). Drug-resistant epilepsy can cause increased mortality, cognitive impairment/developmental delays and poorer quality of life. It is therefore important to control seizures to reduce developmental delays in paediatric epilepsy. Seizure control may be … Read More
Approximately 75% – 90% of individuals with TSC will have epilepsy at some point in their lives. There is renewed interest in the therapeutic benefits of cannabis medications, especially for individuals affected by treatment-resistant epilepsy, however clear prescribing guidelines for … Read More
This is Kim Kerin-Ayres’ final week with TSA. We would like to thank Kim, who has been our Telehealth Nurse since 2019, for the fabulous support she has provided to everyone in our TSC Community. We feel lucky to have … Read More
It is with very mixed emotions that we announce that Dr John Lawson, one of TSA’s long-standing medical advisors, who has recently been on long service leave from Sydney Children’s Hospital, will be taking up a new position with NSW … Read More
TSA would like to extend its thanks to Dr Clara Chung, Clinical Geneticist at Sydney Children’s Hospital, Randwick, NSW and the team at Healthed for producing a podcast for GPs and primary health care professionals which talks about what TSC … Read More
In October’s Reach Out we mentioned that TSA is working with others to advocate for a medical benefits scheme (MBS) number for abdominal MRI for TSC screening, which is the internationally recommended screening test. If successful, this would make abdominal … Read More
Applications to be our TSA Telehealth Nurse supporting our lovely community are CLOSING THIS FRIDAY 4 Feb. This is a flexible, work from home role (approx. 6 hours per week) providing telephone support and information to people in Australia affected … Read More
Nearly 90% of individuals affected by TSC experience a wide range of neuropsychiatric symptoms that fall under the umbrella of TAND, TSC Associated Neuropsychiatric Disorders. These include behavioural, psychiatric, intellectual, academic, neuropsychological and psychosocial issues. Autism spectrum disorder (ASD) is … Read More
TSA is seeking a new telehealth nurse to support its lovely Community. This is a part-time, flexible, work from home role (approx. 6 hours per week) providing telephone support and information to people in Australia affected by TSC. As the … Read More
We are sad to announce that Kim, our TSA telehealth nurse, will be leaving our team shortly. We thank Kim for the fantastic support and information she has provided to so many of our TSC Community. Kim says the past … Read More