Free Zoom Education Events

Category: Events, TSA News | 0

TSA is offering two free zoom education events on topics you have told us you need help with. We will connect you with leading experts who can offer practical tips and answer your questions. These online events are free to … Read More

Parachute Packs now available

Category: Events, TSA News | 0

Thank you to everyone who joined us on Friday 15 May, TSC Global Awareness Day for the launch of our Parachute Pack. If you missed it, you can click here to view a recording of the event. We are thrilled that families of children who are diagnosed with Tuberous Sclerosis Complex (TSC) will, for the first time, have access to accurate, up-to-date support and information packs, ensuring they are aware of life-changing early intervention treatments for their child.

Today is TSC Global Awareness Day

Category: Events, TSA News | 0

Today is TSC Global Awareness Day and we are launching our Parachute Pack. Please join us at 10am this morning for a virtual event where we will come together to mark this special day and these wonderful new educational resources for families facing a new diagnosis of TSC.

Join us for TSC Global Awareness Day

Category: Events, TSA News | 0

You are invited to join us at 10am (AEST) on Friday 15 May for a zoom video call to mark TSC Global Awareness Day and celebrate the launch of TSA’s new diagnosis parachute packs. Get your family together and have some fun.  Put on your (temporary) TSC wave tattoos and give us a song, a dance, or just a wave to show your support for everyone living with TSC.

Lizzie’s Calorie Free Lunch 2020

Category: Events, Fundraising | 0

Due to the coronavirus crisis we will NOT be going ahead with the usual Lizzie’s Lunch event at the Hills Lodge on Sunday 14 June as planned. Join our Lizzie’s Calorie Free Lunch 2020 – a virtual experience at which no calories will be consumed!

TSC Global Awareness Day is coming soon

Category: Events, Fundraising | 0

You can join this year’s TSC Global Awareness Day celebrations by joining our #Tatts4TSC campaign. Now in its third year, #Tatts4TSC provides TSC families with a simple and easy way to raise awareness about this rare disease and have some fun while fundraising to support TSA’s work.

Save the date for Lizzie’s Lunch 2020

Category: Events, Fundraising | 0

Save the date: Sunday, 14 June 2020 at The Hills Lodge, Castle Hill.
Lizzie’s Lunch is one of TSA’s major annual fundraising events. Funds raised provide vital support for people living with tuberous sclerosis throughout Australia. Tickets will be on sale soon for our 7th Lizzie’s Lunch.

Rare Disease Day Event

Category: Events | 0

You are invited to join Genetic Alliance, Sanofi Genzyme and Syndromes without a name for an evening of discussion and interaction with the rare disease community. Those impacted by rare diseases often experience significant health, psychosocial, economic burdens and diagnostic … Read More

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