The Tuberous Sclerosis Complex International (TSCi) meeting in Windsor brought together TSC organisations from 22 countries to share knowledge and ideas and plan for future TSCi activities. The meeting welcomed representatives from Belgium, Brazil, Mexico, Russia, Slovakia and Switzerland for … Read More
A report from the 2015 International TSC Research Conference in Windsor, United Kingdom September 10-12th. From Treatment to Prevention, the global TSC research community asks if postponing the complications of TSC indefinitely is the path to a cure for TSC.
To mark Tuberous Sclerosis Global Awareness Day, TSC affected families and other TSA supporters are invited to come along to a picnic in a city or town closest to you. If you would like to host a picnic, contact … Read More
May 15th will be the third annual TSC Global Awareness Day. And for the third year we will celebrate with a series of social events around Australia. Our network of regional contacts are confirming details in their towns and cities … Read More
A post from Clare Stuart, ATSS Project Manager I am grateful to be attending this event and excited to bring back knowledge, ideas and inspiration to enhance the work of ATSS for the benefit of TSC families across Australia and … Read More
At the 2013 ATSS Family Conference, many sessions were recorded. The following are available on DVD and online: Professor Petrus de Vries, speaking about how TSC can affect behaviour, cognition, learning and mental health. Petrus is a world-leading researcher into … Read More
Thank you to our volunteer regional contacts who organised picnics in their local areas on May 19th. For many families, meeting others living with TSC and sharing stories and information is incredibly helpful. Picnics were held in (from east to … Read More
Making it Possible Parent Workshop How you can think, plan and achieve goals for your child and family The Association for Children with a Disability is running a series of workshops around Victoria. How can you create a fulfilling life … Read More
On this day, thousands of individuals and families affected by Tuberous Sclerosis Complex (TSC) will join together to increase public awareness of the rare disease and share their stories of hope for the future. Global Awareness Day is an initiative … Read More
The 2013 ATSS Family Conference was held in Perth on 2nd and 3rd of March. This was the first time ATSS has held a major event in Western Australia and it was a great opportunity for people from Perth and … Read More