Thank you to our volunteer regional contacts who organised picnics in their local areas on May 19th. For many families, meeting others living with TSC and sharing stories and information is incredibly helpful. Picnics were held in (from east to … Read More
Making it Possible Parent Workshop How you can think, plan and achieve goals for your child and family The Association for Children with a Disability is running a series of workshops around Victoria. How can you create a fulfilling life … Read More
On this day, thousands of individuals and families affected by Tuberous Sclerosis Complex (TSC) will join together to increase public awareness of the rare disease and share their stories of hope for the future. Global Awareness Day is an initiative … Read More
The 2013 ATSS Family Conference was held in Perth on 2nd and 3rd of March. This was the first time ATSS has held a major event in Western Australia and it was a great opportunity for people from Perth and … Read More
One of the most challenging times for individuals affected by Tuberous Sclerosis and their families can be transition. This is the time when children are becoming adults, finding their identities beyond the family and also facing challenges moving from the … Read More
If you were considering coming to Perth in March for the 2013 ATSS Conference, here’s two more good reasons! Reason 1: Professor Petrus deVries, a talented speaker and researcher into the ways that TSC affects learning, cognition, behaviour and mental … Read More
June saw the biggest Tuberous Sclerosis event ever held in Melbourne. An enthusiastic group of families and health professionals gathered at Royal Children’s Hospital for the ATSS conference. The conference provided different perspectives from different speakers:three neurologists, an epilepsy nurse, … Read More
Spots are available to go to a ATSS Family Camp in Newcastle, NSW on Mon 26 – Fri 30 November 2012. The camps are run by the University of Newcastle and specific to families of a child with a rare … Read More
On Sunday 12th August, ATSS will have a Seminar Day at Sydney Children’s Hospital. The day will include: The ATSS Annual General Meeting Professor Ernie Sommerville, speaking about what a neurologist does when seizures cannot be controlled Dr David Mowat, … Read More