Researchers at Melbourne University and the Australian Genomics Health Alliance would like your feedback. They are working on a project for which they are searching for participants to give feedback on the effect of the COVID-19 crisis on the quality … Read More
Talking to children about this virus isn’t always easy. The NSW Department of Health has released a great booklet to help parents talk to their young children about COVID-19. We thought you might find this a helpful resource for your … Read More
We would like to invite our TSC Community to join in a very time-sensitive, international research project aimed at finding out how individuals with special needs are coping with the coronavirus (COVID-19) pandemic and all its repercussions. Dr Ru Ying … Read More
On 8 April 2020, Rare Voices Australia (RVA), in conjunction with its Scientific and Medical Advisory Committee, issued this statement calling for the development of critical care guidelines for Australians living with a rare disease to inform Australian hospitals and … Read More
You may find the following tips for parents and carers in the time of COVID-19 a helpful resource. This information was shared with us by Prof Petrus de Vries, a child and adolescent psychiatrist at the University of Cape Town, South Africa who specialises in TAND (TSC Associated Neuropsychiatric Disorders).
The outbreak of the coronavirus COVID-19 has impacted people in many and varying ways all around the world. It is understandable that during this global pandemic people may be feeling afraid, worried, anxious and overwhelmed by the constantly changing alerts and media coverage regarding the spread of the virus. It is normal to feel stress about this uncertain situation. We have gathered some wellness resources to help you and your family manage your wellness and wellbeing during these times.
Unless you or your child is acutely unwell, we encourage you to talk to your doctor about the implications of COVID-19 specific to your individual circumstances. If you or your child is acutely unwell call 000 for emergency assistance. The most up-to-date and recommended links and sources of more general health information are detailed below