Thanks to Eloise and the Heaney family for their generous support of the Royal Children’s Hospital’s Good Friday Appeal and raising awareness of Tuberous Sclerosis. Read the full article.
The National Institutes of Health in the United States will host a workshop this month with TSC researchers from around the world to refresh the research plan for TSC. Tuberous Sclerosis Australia has made a submission to the workshop including … Read More
Families living in the UK with Tuberous Sclerosis have asked for your help via the Tuberous Sclerosis Association. These families do not have access to mTOR inhibitor medicines, even though the medicine has been approved for use in the UK for over … Read More
The Tuberous Sclerosis Alliance, our sister organisation in the United States, have developed the #IAMTSC public awareness campaign – aiming to reach members of the general public to explain Tuberous Sclerosis, the importance of TSC research and the stories of … Read More
To mark Tuberous Sclerosis Global Awareness Day, TSC affected families and other TSA supporters are invited to come along to a picnic in a city or town closest to you. If you would like to host a picnic, contact … Read More
The generosity and hard work of Ian and Sharron Bilsborough has resulted in $9,140 being raised for Tuberous Sclerosis Australia over the summer holidays. Along with their friends who holiday at the Surfside Caravan Lodge in Sussex Inlet NSW, this … Read More