Rare Disease Day Event

Category: Events | 0

You are invited to join Genetic Alliance, Sanofi Genzyme and Syndromes without a name for an evening of discussion and interaction with the rare disease community. Those impacted by rare diseases often experience significant health, psychosocial, economic burdens and diagnostic … Read More

How to get the most out of your GP

Category: Uncategorized | 0

Many people contact our TSA Nurse to say that they have trouble finding a GP who has experience with the health needs of someone with TSC, and that this can lead them to feel frustrated and isolated. Here are some tips that we hope will help.

Read our survey results

Category: TSA News | 0

On behalf of our staff and management committee, we thank everyone who completed our survey. The aim of this survey was to find out more about you, our TSC community. We had an excellent response and your feedback will help our planning for 2020.

Thank you Kerfoot

Category: Fundraising, TSA News | 0

You may have recently read Oskar’s story in our Christmas Appeal. We are thrilled to share it has inspired a $5,000 donation. Heartfelt thanks to the team at Kerfoot Pty Ltd for your exceptionally generous Christmas gift. Oskar’s dad, Ryan … Read More

Survey Winners

Category: TSA News | 0

Everyone who completed TSA’s 2019 survey went into the draw for a chance to win one of two $100 gift vouchers for Westfield. Congratulations to our winners Nicole Stone in Western Australia and Rob Rossano in New South Wales. Thank … Read More

November newsletter

Category: TSA News | 0

Read all the latest news and updates from TSA including how to have your say in our latest survey, save the date for our 2020 TSC Connect Conference and much more

Tickets are selling fast for Comedy for a Cure

Category: Events, Fundraising | 0

Tickets are now on sale for Sydney’s first Comedy for a Cure. We hope you will join us for a night where we will harness the power of laughter to raise critically needed funds to help people affected by a rare and devastating disease called Tuberous Sclerosis Complex (TSC). Comedy for a Cure will feature a fantastic line up of comedians with Peter Berner headlining the show

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