Stay up to date with COVID-19

Unless you or your child is acutely unwell, we encourage you to talk to your doctor about the implications of COVID-19 specific to your individual circumstances.  If you or your child is acutely unwell call 000 for emergency assistance. The most up-to-date and recommended links and sources of more general health information are detailed below

TSC Global Awareness Day is coming soon

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You can join this year’s TSC Global Awareness Day celebrations by joining our #Tatts4TSC campaign. Now in its third year, #Tatts4TSC provides TSC families with a simple and easy way to raise awareness about this rare disease and have some fun while fundraising to support TSA’s work.

Save the date for Lizzie’s Lunch 2020

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Save the date: Sunday, 14 June 2020 at The Hills Lodge, Castle Hill.
Lizzie’s Lunch is one of TSA’s major annual fundraising events. Funds raised provide vital support for people living with tuberous sclerosis throughout Australia. Tickets will be on sale soon for our 7th Lizzie’s Lunch.

Rare Disease Day Event

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You are invited to join Genetic Alliance, Sanofi Genzyme and Syndromes without a name for an evening of discussion and interaction with the rare disease community. Those impacted by rare diseases often experience significant health, psychosocial, economic burdens and diagnostic … Read More

How to get the most out of your GP

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Many people contact our TSA Nurse to say that they have trouble finding a GP who has experience with the health needs of someone with TSC, and that this can lead them to feel frustrated and isolated. Here are some tips that we hope will help.

Read our survey results

Category: TSA News | 0

On behalf of our staff and management committee, we thank everyone who completed our survey. The aim of this survey was to find out more about you, our TSC community. We had an excellent response and your feedback will help our planning for 2020.

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