We are delighted to let you know that our friends at Sydney Children’s Hospital in Randwick are now recruiting for the TSC-STEPS research trial (formerly known as STOP2). The purpose of this ground-breaking research is to learn more about the … Read More
TSA’s March 2023 e-newsletter is now available. In this issue details for an upcoming TSC event in Melbourne and information on new clinical trials now recruiting.
Researchers at The Royal Children’s Hospital in Melbourne are conducting a new medical research study exploring the potential benefits of medicinal cannabis for managing behavioural symptoms in children with developmental disabilities. Children aged 6 to 18 years with an intellectual … Read More
In this issue we have an update on TSA’s office closure over the holidays and a thank you to Samuel’s school who held a gold coin day for TSA.
Choosing to make a charitable bequest is one of the most profound decisions you can make. For many of us, leaving a gift in our Will to a charity that is important to us is the opportunity to make a donation … Read More
Our volunteer regional contacts provide peer support over the phone and in their local areas. They work with local families to share information and experiences.
In this issue of Research Round Up we have included a summary on the long-term safety of everolimus and a study which evaluated safety and anti-epileptic efficacy of Rapamycin treatment in paediatric patients with drug-resistant TSC- associated epilepsy.
The 9th annual Lizzie’s Lunch raised just over $26,000 to help individuals and families facing the challenges of life with Tuberous Sclerosis Complex (TSC). This takes the total raised at Lizzie’s Lunches to more than $135,000 since its inception in … Read More
TSA is looking for people to join a newly formed Philanthropy and Fundraising committee. This is an opportunity to use your experience, connections and benevolence to help TSA grow our fundraising program. TSA rely on fundraising and donations to run … Read More
Read all the latest news from TSA including how you can help be an advocate, where to download your copy of the latest TSC surveillance & management guidelines, upcoming events and more