Reach Out survey outcomes

Thank you to everyone who took part in our Reach Out survey earlier this year. Encouragingly, most people said they read the magazine from cover to cover and that they find the content always interesting and relevant.  Readers rated Personal Stories, Research News and TSC Information as the most relevant and interesting content.  So, please keep sharing your personal stories with us!

Improving developmental abilities in infants with TSC

This is a report on a small pilot study of an evidence-based, parent-mediated behavioral intervention focused on improving early social communication and play skills in five children with TSC, aged 1–3 years.    Background  This team’s previous study published in 2014, found that infants with TSC demonstrated early delays in nonverbal cognition and … Read More

What do you think of telehealth?

Category: TSA News | 0

We know that during pandemic, many of you have had face-to-face medical appointments switched to telehealth (phone or video) appointments.  We’d like to hear about your experiences of this – good and bad. If you are happy to share your … Read More

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