CLINICAL TRIAL of topical rapamycin (sirolimus) for facial angiofibromas – some interstate travel funding available

Dr Kate Riney and the team at Queensland Children’s Hospital are currently recruiting patients for a formal phase II/III trial of topical rapamycin (sirolimus) for facial angiofibromas.  Some funding for interstate travel is available, making this trial available for eligible … Read More

April 2021 update on the COVID-19 vaccination program

Category: COVID-19, TSA News | 0

As you will have heard the Government has recently recommended that people under 50 years of age are given the Pfizer vaccine rather than AstraZeneca.   We know that this may have resulted in the postponement of vaccinations for some of our community.  It is a confusing time with information and expectations changing rapidly.  Unfortunately, at this stage, there is no specific advice for people with TSC, and it seems unlikely that there will be in the short term.  We can certainly understand and sympathise with why members of our community may be feeling frustrated by the lack of certainty.

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