We are very excited to announce that Kim Kerin-Ayres will be joining TSA as our new telehealth nurse.
GW Pharmaceuticals has announced positive top-line results of a Phase 3 clinical trial of EPIDIOLEX® (cannabidiol or CBD) CV in the treatment of seizures associated with Tuberous Sclerosis Complex (TSC). This is exciting news and a step further along the … Read More
The Elizabeth Pinkerton Memorial Award is presented annually by Tuberous Sclerosis Australia to a health professional to recognise their efforts in improving the lives of TSC-affected people and their families in Australia. TSA is now pleased to seek nominations for … Read More
It was announced today that TSA is one of 11 patient organisations that will receive funding support for a part-time telehealth nurse under the Patient Pathways program developed by the Centre for Community-Driven Research (CCDR). This pilot project is intended … Read More
The National Institutes of Health in the United States will host a workshop this month with TSC researchers from around the world to refresh the research plan for TSC. Tuberous Sclerosis Australia has made a submission to the workshop including … Read More
Families living in the UK with Tuberous Sclerosis have asked for your help via the Tuberous Sclerosis Association. These families do not have access to mTOR inhibitor medicines, even though the medicine has been approved for use in the UK for over … Read More
The Tuberous Sclerosis Alliance, our sister organisation in the United States, have developed the #IAMTSC public awareness campaign – aiming to reach members of the general public to explain Tuberous Sclerosis, the importance of TSC research and the stories of … Read More
To mark Tuberous Sclerosis Global Awareness Day, TSC affected families and other TSA supporters are invited to come along to a picnic in a city or town closest to you. If you would like to host a picnic, contact … Read More