The RArEST project is a federal government funded initiative that aims to increase awareness, education, support and training for rare diseases among health professionals and within the rare disease community. Rare Voices Australia is looking for people with lived experience … Read More
TSA is seeking a new telehealth nurse to support its lovely Community. This is a part-time, flexible, work from home role (approx. 6 hours per week) providing telephone support and information to people in Australia affected by TSC. As the … Read More
We are sad to announce that Kim, our TSA telehealth nurse, will be leaving our team shortly. We thank Kim for the fantastic support and information she has provided to so many of our TSC Community. Kim says the past … Read More
You can now find a printable pdf of both the updated TSC diagnostic criteria and the updated TSC surveillance and management guidelines on our website, by clicking here.
Some time ago Tuberous Sclerosis Australia (TSA) and Mito Foundation came together to support research examining costs incurred by families in Australia with children living with chronic and complex diseases. 13 families – 10 with TSC – generously gave their … Read More
This Thursday 4 November is Genetic Counsellor Awareness Day (GCAD). The Australasian Society of Genetic Counsellors (ASGC) will be holding a webinar to mark the occasion from 1-2pm AEDT. In the webinar they will talk about the vital work Genetic … Read More
Participate Australia based in NSW is running three FREE information sessions to help people understand Support Coordination. They cover what makes a good support coordinator, how to submit an effective review and the differences between SIL and SDA. For more … Read More
