Rare Voices Australia (RVA) has just launched a new report, Disability & Rare Disease: Towards Person Centred Care for Australians with Rare Diseases. The report highlights significant unmet need and a need for the health and disability sectors to collaborate to … Read More
The aim of this survey is to find out more about you and what you need and want frrom us. Your feedback is important in helping us focus our efforts and further improve our services. Your responses will be kept private and confidential. Everyone who participates in this survey has … Read More
We are thrilled to announce our first Sydney Comedy for a Cure raised almost $27,000. What a great night! Almost 200 guests gathered at Paddo RSL on Saturday 26 October to raise vital funds to help Australians living with Tuberous … Read More
The October 2019 edition of Reach Out is now available to read online. This issue’s contents include: Welcome Kim, TSA’s new Nurse The Value of Connections Research News If you would like to receive Reach Out by post, sign up … Read More
TSA’s Annual Report for 2019 is now available. The report charts our activities and successes this year which have been made possible thanks to the support of our fantastic TSC community. In response to feedback from our members about good … Read More
You have the chance to win an amazing 8-night accommodation package at the luxury Alamanda resort in Palm Cove.
The TSA team is looking for an enthusiastic admin whizz who has 3-4 hours per week available to work from home on a regular basis. More details: SEEK volunteers
The TSA Survey 2019 is now open. We urge you to complete it asap. The aim of this survey is to find out more about you, our TSC community. Your feedback is important in helping TSA focus its efforts and further improve our services, communications and fundraising. We are also … Read More
Tuberous Sclerosis Australia (TSA) is delighted to announce that Dr Fiona McKenzie, Geneticist at the King Edward Memorial Hospital for Women in Subiaco, Western Australia, is the winner of the 2019 Elizabeth Pinkerton Memorial Award. This award is given annually by TSA to a health professional in … Read More
Thanks to those who were able to attend TSA’s AGM last Sunday. It was a positive and productive meeting and we are delighted to welcome Miriam Chalk and Rob Haggett as new committee members and Alison McIvor as a re-elected … Read More