All the latest news from TSA – May edition
TSA’s May enewsletter is now available.
Vagus nerve stimulation (VNS) and drug-resistant epilepsy: a meta-analysis
Many children are affected by drug-resistant epilepsy (DRE). Drug-resistant epilepsy can cause increased mortality, cognitive impairment/developmental delays and poorer quality of life. It is therefore important to control seizures to reduce developmental delays in paediatric epilepsy. Seizure control may be … Read More
Expert advice for prescribing cannabis medicines for patients with epilepsy
Approximately 75% – 90% of individuals with TSC will have epilepsy at some point in their lives. There is renewed interest in the therapeutic benefits of cannabis medications, especially for individuals affected by treatment-resistant epilepsy, however clear prescribing guidelines for … Read More
Reach Out, April 2022
The April 2022 edition of Reach Out is now available to read online. In this issue we acknowledge and thank some of the amazing health care professionals who support and care for our TSC Community. TSA Reach Out April 2022
Show your thanks to a health professional who has gone ‘above and beyond’
Being a health care professional is hard. The workload is demanding, the hours can be long and unpredictable, the conditions can be tough and each day can literally be filled with life and death. And yet, many of us have … Read More
Thanks Kim and Welcome Katrina!
This is Kim Kerin-Ayres’ final week with TSA. We would like to thank Kim, who has been our Telehealth Nurse since 2019, for the fabulous support she has provided to everyone in our TSC Community. We feel lucky to have … Read More
Thank you Dr John Lawson
It is with very mixed emotions that we announce that Dr John Lawson, one of TSA’s long-standing medical advisors, who has recently been on long service leave from Sydney Children’s Hospital, will be taking up a new position with NSW … Read More
New podcast for GPs and primary health care professionals
TSA would like to extend its thanks to Dr Clara Chung, Clinical Geneticist at Sydney Children’s Hospital, Randwick, NSW and the team at Healthed for producing a podcast for GPs and primary health care professionals which talks about what TSC … Read More
Today is Rare Disease Day
Today is Rare Disease Day – a globally coordinated day to raise awareness of rare disease and its impact on those with a rare disease, their families and friends. We hope everyone in our TSC Community will support us today … Read More
Funding for Abdominal MRI – Please lend your support by sending an email
In October’s Reach Out we mentioned that TSA is working with others to advocate for a medical benefits scheme (MBS) number for abdominal MRI for TSC screening, which is the internationally recommended screening test. If successful, this would make abdominal … Read More