TSA’s ANNUAL GENERAL MEETING Sunday 29 September at 3pm Balmain Library Meeting Room, 370 Darling Street, Balmain, Sydney, NSW 2041 President Debbie Crosby and the TSA Management Committee would like to invite all members to the AGM for 2019. The … Read More
One of the largest international scientific research programs on epilepsy has reached its end. The EPISTOP project proved that preventive treatment decreased the risk and severity of epilepsy. The results of the EPISTOP research will be used to develop a … Read More
Do you or a member of your family have a genetic condition? Would you like to understand more about genes, genetic testing and research? Genetic Alliance is running a free information seminar on Wednesday 30 October 2019 from 10am to … Read More
The Elizabeth Pinkerton Memorial Award is presented annually by Tuberous Sclerosis Australia to a health professional to recognise their efforts in improving the lives of TSC-affected people and their families in Australia. Thank you for the nominations we have already … Read More
Siblings Australia offer support for siblings of children and adults with chronic conditions including disability, chronic illness and mental health issues. They are running a series of workshops in Brisbane (26 July), Adelaide (29 July) and Sydney (8 August) for … Read More
We are very excited to announce that Kim Kerin-Ayres will be joining TSA as our new telehealth nurse.
We hope you have already purchased your tickets, as we’re delighted to report that Lizzie’s Lunch is now a SELL OUT. We look forward to seeing everyone on Sunday at this fabulous fundraiser event.
GW Pharmaceuticals has announced positive top-line results of a Phase 3 clinical trial of EPIDIOLEX® (cannabidiol or CBD) CV in the treatment of seizures associated with Tuberous Sclerosis Complex (TSC). This is exciting news and a step further along the … Read More
The Elizabeth Pinkerton Memorial Award is presented annually by Tuberous Sclerosis Australia to a health professional to recognise their efforts in improving the lives of TSC-affected people and their families in Australia. TSA is now pleased to seek nominations for … Read More
It was announced today that TSA is one of 11 patient organisations that will receive funding support for a part-time telehealth nurse under the Patient Pathways program developed by the Centre for Community-Driven Research (CCDR). This pilot project is intended … Read More