About this paper The international guidelines provide the ‘gold standard’ for TSC diagnosis, surveillance and management. These are the first significant updates since 2013 and reflect advances in knowledge and approvals of new therapies. What was the process used to … Read More
If you are a teenager living with TSC or the parent/carer of a child with TSC who is about to reach their teenage years, you might want to start thinking about planning the transition from child to adult care. In … Read More
It’s national carers week and the Royal Children’s Hospital, Murdoch Children’s Research Institute, Australian Genomics Genetic Epilepsy Team Australia (GETA) and The Epilepsy Foundation are working together on a research project to find out more about people’s experiences of caring … Read More
The October 2021 edition of Reach Out is now available to read online. TSA Reach Out October 2021
The international TSC surveillance guidelines recommend magnetic resonance imaging (MRI) of the abdomen to check for possible renal angiomyolipomas (AMLs) or cysts. In Australia, the high out of pocket costs of an MRI make it difficult for many people with … Read More
Clinical trial investigating potential treatment for irritability associated with autism spectrum disorder (ASD) in adolescents aged 13 to 17 Research has shown the gut bacteria of autistic children is different to non-autistic children. It is possible that certain bacteria derived … Read More
SATURDAY 20 NOVEMBER 2021. The conference will feature a 3-hour virtual event, accessed via Zoom for everyone around Australia. There will also be a full day face-to-face event in Perth, WA. The virtual event is an opportunity to find out … Read More
If you missed or want to rewatch Associate Professor Honey Heussler’s excellent zoom education event on sleep issues in children with TSC, it is now available on our website – click here
All members of TSA are welcome to attend TSA’s virtual Annual General Meeting (AGM) which will be held via Zoom on Sunday 10 October at 2pm ADST. If you would like to attend, please email [email protected] and we will send … Read More
GeneEQUAL is a new study in NSW looking at how we can provide inclusive genomic healthcare. The first step involves interviews with adults with intellectual disability about their experiences with genetic services, even if that happened when they were a … Read More