TSC Global Awareness Day 2023
Every year on May 15, individuals and families around the world who are impacted by TSC come together to raise awareness for this devastating rare disease.
Rare Disease Day Event in Penrith
Our friends at Genetic Alliance Australia and SWAN (Syndromes Without a Name) are presenting at a Rare Disease Day event in Penrith, NSW on Friday 24th February. You are invited to join them. Rare Disease Day is an international day that … Read More
Rare Disease Day Morning Tea at UTS
Rare Disease Day is an international day that raises awareness of rare diseases and the importance of equity, diagnosis, treatments and inclusion. On Rare Disease Day 2023, UTS in Sydney is holding a morning tea to ‘Meet the Researchers’ who … Read More
Join the discussion!
The group currently hosts over 600 members of our TSC Community from across Australia and New Zealand. It is a safe and welcoming space where you can ask questions, share lived experiences, and connect with others who are also affected by TSC.
The Victoria Disability & Housing Forum
The Victoria Disability & Housing Forum commences on Monday 13 February with a series of free events over two weeks. The Forum is for people with disability, their families, and carers, and others who are interested, aspart of the Opening … Read More
Share your stories with Us!
This is why we’re putting the call out to everyone who feels comfortable to share your experiences with TSC.
Share this introductory guide to TSC with your child’s teachers
Two years ago, we created a series of guides called In Safe Hands. Our goal with this was for families to feel they can trust their child with TSC will be ‘in safe hands’ during their school years and that … Read More
New TSC Research Trial Now Recruiting in Australia
We are delighted to let you know that our friends at Sydney Children’s Hospital in Randwick are now recruiting for the TSC-STEPS research trial (formerly known as STOP2). The purpose of this ground-breaking research is to learn more about the … Read More
Congratulations TSC Alliance!
Congratulations to our friends at TSC Alliance whose concerted advocacy efforts have resulted in the US Congress approving US$8 million in funding for the Tuberous Sclerosis Complex Research Program (TSCRP) in fiscal year 2023. To date, US$113 million has been … Read More
Thank you to the students of Stradbroke School!
The students at Stradbroke School in South Australia held casual day on the last day of term and students were encouraged to donate a gold coin TSA as one of their fellow students lives with TSC. They raised a whopping … Read More