Rare Disease Day Event in Penrith

Category: TSA News | 0

Our friends at Genetic Alliance Australia and SWAN (Syndromes Without a Name) are presenting at a Rare Disease Day event in Penrith, NSW on Friday 24th February. You are invited to join them. Rare Disease Day is an international day that … Read More

Rare Disease Day Morning Tea at UTS

Category: Uncategorized | 0

Rare Disease Day is an international day that raises awareness of rare diseases and the importance of equity, diagnosis, treatments and inclusion. On Rare Disease Day 2023, UTS in Sydney is holding a morning tea to ‘Meet the Researchers’ who … Read More

Join the discussion!

Category: TSA News | 0

The group currently hosts over 600 members of our TSC Community from across Australia and New Zealand. It is a safe and welcoming space where you can ask questions, share lived experiences, and connect with others who are also affected by TSC.

Congratulations TSC Alliance!

Category: TSA News | 0

Congratulations to our friends at TSC Alliance whose concerted advocacy efforts have resulted in the US Congress approving US$8 million in funding for the Tuberous Sclerosis Complex Research Program (TSCRP) in fiscal year 2023. To date, US$113 million has been … Read More

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