In December, the Pharmaceutical Benefits Advisory Committee (PBAC) will consider an application from Novartis for Everolimus/Afinitor to be listed on the Pharmaceutical Benefits Scheme (PBS) for people with TSC who are experiencing seizures that do not respond well to available … Read More
Dr Helen Whitford, a staff specialist in respiratory medicine at the Alfred Hospital,is the recipient of the 2017 Elizabeth Pinkerton Memorial Award. This award is given annually by Tuberous Sclerosis Australia to a health professional in recognition of their efforts to … Read More
The October 2017 edition of Reach Out is now available to read online. This issue’s contents include: TSC Paralympian Taylor Doyle’s next battle with epilepsy Information and stories about how TSC affects the kidneys Celebrating our fundraisers If you would … Read More
Thank you to Dr Chirag Patel for giving his time and expertise for this webinar. For more information on the genetics of tuberous sclerosis: Read our genetics information page Read the stories of families with TSC about how they have approached … Read More
You are invited to join TSA at our 2017 information day in Melbourne for people with TSC and their families. The event will include TSC expert speakers, a chance to meet others living with TSC and the presentation of the … Read More
Hear about the genetics of TSC, including what we know and what questions researchers are still exploring. Learn about genetic testing and how to access genetic services in your area. Find out about current and emerging technologies that ca help people with TSC make decisions about planning their families.
A great opportunity for extended family members to ask questions about the genetics of TSC, so consider inviting your family and friends to join.
TSA is fortunate to have Sydney University Genetic Counselling student, Todor Arsov working with us. Todor has already completed a revision of our Genetics Information Page and he needs help with his next project for TSA. We’re collating the experiences … Read More
Tuberous Sclerosis Australia are proud to announce Sue and Ross Pinkerton as life members of TSA. This award goes some way to acknowledging their amazing contribution over three decades to the Australian TSC community. At our annual fundraiser, Lizzie’s Lunch, we … Read More
Thank you to Dr John Lawson for giving his time and expertise for this webinar. We’re looking forward to our second webinar on the genetics of TSC on Friday 7th July at 12:30pm AEST. For more information on TSC and … Read More
In July, the Pharmaceutical Benefits Advisory Committee (PBAC) will consider an application from Novartis for Everolimus/Afinitor to be listed on the Pharmaceutical Benefits Scheme (PBS) for people with TSC who are experiencing seizures that do not respond well to available … Read More