Dr Bec Mitchell continues her valuable work on the DOTS* study that is increasing our knowledge of the risk factors for autism in children with TSC and of possible interventions for children at risk of autism. Dr Mitchell is a … Read More
All of our Sydney TSC community, particularly families with young children, are invited to join us on 1 December to help launch our new resource to explain TSC to children.
If you cannot make this event, sign up to TSA’s email newsletter for more information about this book and how you can get your copy.
If you are an adult living independently or semi-independently with TSC who would like to meet other adults with TSC, we want to hear from you. We’d like to know if you are interested in attending a weekend event to … Read More
The October 2018 edition of Reach Out is now available to read online. This issue’s contents include: Information about transition from paediatric to adult health services Our celebrations gallery highlighting the many things young people with TSC do for fun … Read More
Thank you Anna and Marian for inspiring a great story on TSC and the importance of fundraising for TSC research in Australia. Take a look at the unique way they are helping TSA. Their efforts are inspired by Anna’s son … Read More
Dr Orli Wargon, a paediatric dermatologist at Sydney Children’s Hospital, is the recipient of the 2018 Elizabeth Pinkerton Memorial Award. This award is given annually by Tuberous Sclerosis Australia to a health professional in recognition of their efforts to improve … Read More
At the next annual general meeting (AGM) of Tuberous Sclerosis Australia Inc., there will be several changes to TSA’s constitution proposed. These are a result of a review of our governance practices by the TSA. This was previously advised in … Read More
TSC Associated Neuropsychiatric Disorders: including learning, behaviour, autism and anxiety
These educational events are for people with TSC, their family members and interested health professionals. TSA is also working with our TSC Professionals Network members to hold events specifically for health professionals to increase their understanding of TAND.
Planned educational events in 2018:
ADELAIDE 26 AUGUST
BRISBANE 8 & 9 SEPTEMBER
SYDNEY 22 SEPTEMBER
We are pleased to share news that Everolimus (Afinitor) for epilepsy has been given a positive recommendation by the pharmaceutical benefits advisory committee (PBAC). This is a recommendation to the Federal Health Minister to add this medicine to the pharmaceutical … Read More